Severe M.E Day - 8th of August 2023
A day to remember everyone who is suffering or who has ever suffered from Severe and Very Severe Myalgic Encephalomyelitis.
Severe ME Understanding & Remembrance Day : This day aims to bring public attention to the illness for the sake of all those presently suffering from Severe Myalgic Encephalomyelitis and to remember all those who have died from ME.
A day to honour the strength of spirit of all those who have endured and continue to endure decades of suffering and profound physical dysfunction and yet receive little, or no recognition or help, but rather continue to experience gross misrepresentation and misinterpretation of their illness and profound disability.
This Years Focus
Malnutrition in severe and very severe ME
Malnutrition can occur in people with severe and very severe ME for a number of reasons. In people with very severe ME one of the major causes is sheer debility; the person is just too debilitated to eat and drink sufficiently. Other causes include difficulty swallowing and gastrointestinal problems. A recent study on severe and very severe ME done in Norway found of those surveyed 37% had nausea and 50% had stomach pains when eating.
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The 25% ME Group is campaigning for better care to prevent malnutrition in people with severe ME. The #EndMalnutritioninME campaign has a Twitter account. Follow them at @MalnutritionME.