Grieving the life you had before M.E
Grieving the life you had before M.E. (as defined by the ICC) is not a side issue of…
The prodromal phase in Myalgic Encephalomyelitis (ME)
The prodromal phase in Myalgic Encephalomyelitis (ME), as described in the International Consensus Criteria (ICC) context, refers to…
Investigating the ME/CFS experience through qualitative analysis of memorial entries
Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is an impairing chronic condition characterized by exhaustion and worsening symptoms following…
“Post-exertional malaise (PEM)
“Post-exertional malaise (PEM), which is the cardinal feature of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), is also reported in…
Hospital Support Pack for people with ME/CFS
A member of the ME/CFS community has provided this positive feedback of the pack being used in their…
The Nightingale Continuum
People with ME/ICC often describe a progressive loss of functional capacity that can feel like “fading away,” as…
Post-Exertional Malaise
Synopsis: “Post-Exertional Malaise is a debilitating condition that distinguishes Long Covid and ME/CFS from other illnesses. This video…
Neurovascular dysfunction is a core, increasingly well-supported feature of Myalgic Encephalomyelitis (M.E.)
Neurovascular dysfunction is a core, increasingly well-supported feature of Myalgic Encephalomyelitis (M.E.), especially when M.E. is understood as…
People with ME often have difficulty carrying on a two-way conversation
People with ME often have difficulty carrying on a two-way conversation not because of disinterest or anxiety, but…
Speaking Your Body’s Truth: Talking to Providers About Post-Exertional Symptom Exacerbation
Overview The article addresses the difficult reality many people with Long COVID, ME/CFS, POTS, and other complex chronic…