Severe M.E Day - 8th of August 2020

A day to remember everyone who is suffering or who has ever suffered from Severe and Very Severe Myalgic Encephalomyelitis.

Severe ME Understanding & Remembrance Day : This day aims to bring public attention to the illness for the sake of all those presently suffering from Severe Myalgic Encephalomyelitis and to remember all those who have died from ME.

A day to honour the strength of spirit of all those who have endured and continue to endure decades of suffering and profound physical dysfunction and yet receive little, or no recognition or help, but rather continue to experience gross misrepresentation and misinterpretation of their illness and profound disability.

This Years Focus

25% ME Group 25 year anniversary celebration to raise awareness and make people with severe ME visible

The 25% ME Group celebrates its 25th anniversary this year. As part of this, we want to feature sufferers’ short stories/pics of how the illness affects them. Please see examples below.

Merryn Crofts who died aged 21 in 2017. Very well known. Only 2nd person in U.K. to have ME recorded on her death certificate.

Please click link for more information about Merryn


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