Severe ME Understanding & Remembrance Day : This day aims to bring public attention to the illness for the sake of all those presently suffering from Severe Myalgic Encephalomyelitis and to remember all those who have died from ME.
A day to honour the strength of spirit of all those who have endured and continue to endure decades of suffering and profound physical dysfunction and yet receive little, or no recognition or help, but rather continue to experience gross misrepresentation and misinterpretation of their illness and profound disability.
This year to mark Severe ME Day (8th August) we decided to feature two articles by daughters about their mothers living with severe ME and the impact on their lives. Two very different stories, one by a journalist and the other by a 9 year old who wished to share her story in the hope of helping others.
Living with ME/CFS: The debilitating, invisible illness stealing women’s energy – ‘I was tired of lying in bed dreaming of all I wanted to do.’
By Lauren Clark, 12 May 2021
See following link for full stories
New video about Severe and Very Severe ME/CFS and Long covid
Life threatening malnutrition in very severe ME/CFS
Howes Goudsmit Prize for Severe ME research