M.E. Awareness 2018

Campaigning for the NICE committee

House of Commons debate on the Pace trial and people with ME

Following the excellent parliamentary debate held 20th February on ‘The PACE Trial and its effect on people with ME’, we are focusing on raising awareness among MPs of the serious problems posed for people with M.E. inherent in the way the NHS approaches this illness.

Carol Monaghan MP, who initiated and led the debate, is asking that any person with M.E. who has deteriorated as a result of following NHS advice make contact with their constituency MP to make them aware. She has heard from many ME patients but is limited in what she can do for other MPs’ constituents. So, if you have been harmed by NHS advice, including ‘PACE’ trial style exercise or ‘behavioural therapy’ aimed at exercise, please let your MP know your story. Carol Monaghan would like to be copied into these communications.

This is very much a case of ‘strike while the iron is hot’ and we encourage you please to take up this suggestion if it is appropriate to your experience. We are aware that some members were not severely affected until following NHS advice to exercise or otherwise increase activity. Now is the time to get this scandal out into the open.

PACE Debate Feb 2018

PACE Trial full debate