“Life in Lockdown: What Matters When All Is Lost”
Thoughtful post by Naomi Whittingham who reflects on living through the lockdown as someone who has effectively had…
Charities request for the removal oF harmful treatments
As charities supporting people with M.E. we have been actively campaigning for NICE to remove the recommendation of…
25% ME Group stance on exercise
We are extremely concerned that some medical/care professionals and sports/exercise specialists are still recommending exercise programmes and/or graded…
Severe ME in Children
A current problem regarding Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is the large proportion of doctors that are either…
Could COVID-19 trigger chronic disease in some people?
Could COVID-19 trigger chronic disease in some people? A handful of viruses have been associated with long-term, debilitating…
ICC Definition for M.E.
Myalgic encephalomyelitis is an acquired neurological disease with complex global dysfunctions. Pathological dysregulation of the nervous, immune and…
Health Care Responsibility and Compassion-Visiting the Housebound Patient Severely Affected by ME/CFS
Many people with severe Myalgic Encephalopathy/Chronic Fatigue Syndrome (ME/CFS) commonly receive no care from healthcare professionals, while some…
Energy systems and pacing in ME/CFS
This helps explain scientifically something everyone with ME knows. Pacing enough to avoid PENE is very hard and…
As lockdown eases, those of us with chronic illnesses must not be left behind
During this pandemic, we have seen a spotlight shone brightly on chronic illness like never before. That those…
Lingering Symptoms, Long-Term Damage: For Some, It’s A COVID-19 Recovery Reality
This is a radio podcast on Post Covid Syndrome that was broadcast yesterday. It is very good and…