May ME Awareness Month
As part of M.E. Awareness Month this May, we’re pleased to share a new resource created especially for…
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Hospital Care for people with severe and very severe ME
This article, also printed in the Summer Newsletter 2024, provides useful resources, including the relevant NICE Guidance, for…
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Response to the Interim Delivery Plan from 25% ME Group
Response to the Interim Delivery Plan from 25% ME Group, a national charity which supports people with severe…
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ME/CFS CPD | Module
ME/CFS CPD | Module https://www.studyprn.com/p/chronic-fatigue-syndrome A message from course author, Dr Nina Muirhead BA (Oxon), BMBCh (Oxon), MRCS…
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#DecodeME Matters
#DecodeME Matters As many of you are aware our advocacy worker, Helen Baxter, has been assisting people with…
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25% ME Group at The Malnutrition Task Force Sharing Practice Day
Our advocacy worker, Helen Baxter, did a talk on preventing avoidable malnutrition in severe ME at The Malnutrition…
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Feedback on survey
Many of you took part in the surveys put together by the James Lind Alliance ME/CFS Priority Setting…
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The IACFSME conference
The IACFSME conference was covered by journalist, Miriam Tucker, who chose to focus an article on our advocacy…
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25% ME Group at IACFSME Conference
25% ME Group at IACFSME Conference Advocacy worker, Helen Baxter attended the International Association for Chronic Fatigue Syndrome/Myalgic…
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Ensuring the Voice of the Very Severely Affected Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patient Is Heard in Research—A Research Model.
Abstract Most of the research about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) has focused on ambulant patients who are…