ME/CFS CPD | Module

ME/CFS CPD | Module A message from course author, Dr Nina Muirhead  BA (Oxon), BMBCh (Oxon), MRCS HOHNS, MEd, PGCipDerm  ME/CFS is one of the most fascinating and important diseases of our time.  In writing this module I have started from scratch. I drew on the international peer reviewed Read more…

#DecodeME Matters

 #DecodeME Matters As many of you are aware our advocacy worker, Helen Baxter, has been assisting people with severe and very severe ME to participate in the DecodeME Study by completing the questionnaire over the telephone with participants who can’t complete it online/on a paper copy. Helen was invited, by Read more…

The IACFSME conference

The IACFSME conference was covered by journalist, Miriam Tucker, who chose to focus an article on our advocacy worker, Helen Baxter’s presentation. The article includes comments from our medical adviser, Dr Speight and Dr Bateman from The Bateman Horne Centre. Medsacpe covering H Baxter’s presentation at IACFSME conference

Ensuring the Voice of the Very Severely Affected Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patient Is Heard in Research—A Research Model.

Abstract Most of the research about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) has focused on ambulant patients who are able to attend clinics. It is estimated that 25% of people with ME/CFS are severely, or very severely, affected and are housebound or bedbound; some require tube feeding. Due to the severity Read more…

ME Awareness Day May 2020

WHAT IS ME AWARENESS DAY? May 12th is a well known date in the ME world as it is International Awareness Day for Myalgic Encephalomyelitis. ME organisations and individuals around the world raise awareness about how ME affects those who have the illness