Developing a clinical assessment toolkit for people with ME/CFS and clinical services Participant Information Sheet
You are being invited to take part in a research study to develop a clinical assessment toolkit for…
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WCA consultation support for organisations
The DWP are proposing to make the WCA much harder to pass and this is going to have…
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The woman being denied the NHS care she needs to treat her ME
This is the inpatient experience of a patient with very severe ME, whose father Michael Gordon gave an…
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DecodeME: the largest study into the causes of ME/CFS – Add your voice!
DecodeME: the largest study into the causes of ME/CFS – Add your voice! DecodeME launched in September 2022, and…
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We Live With A Monster A Myalgic Encephalomyelitis (M.E.) Story
Sharon Tiday said on Twitter: For a while now people have told me that I should get this…
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A life cut short by medical neglect
A life cut short by medical neglect: interview with Sarah Boothby, whose daughter Maeve died at 27 of…
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Thousands of ME patients ‘failed by shockingly poor NHS care’
National treatment guidelines published two years ago are still not widely implemented, says charity Kat Lay, Health Editor…
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ME/CFS CPD | Module
ME/CFS CPD | Module https://www.studyprn.com/p/chronic-fatigue-syndrome A message from course author, Dr Nina Muirhead BA (Oxon), BMBCh (Oxon), MRCS…
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#DecodeME Matters
#DecodeME Matters As many of you are aware our advocacy worker, Helen Baxter, has been assisting people with…
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Having Severe ME/CFS: A Report From Norway
In 2018, the Norwegian ME Association undertook a large survey of severely ill ME patients. We wanted to…