Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed
George Monbiot Changes in guidance and science seem to have little impact on millions of devastated lives. It’s…
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Have you had Long COVID or ME/CFS for over 2 years?
HERITAGE (Health Effects fRom Infection sequelae: Tailoring services and Advancing GuidancE in Long Covid and ME/CFS) is a…
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Open Letter to the Royal College of Psychiatrists
Dear Prof. Subodh Dave, President-elect, 12 May, 2026thWe are writing on ME Awareness Day in relation to the…
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Grieving the life you had before M.E
Grieving the life you had before M.E. (as defined by the ICC) is not a side issue of…
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The prodromal phase in Myalgic Encephalomyelitis (ME)
The prodromal phase in Myalgic Encephalomyelitis (ME), as described in the International Consensus Criteria (ICC) context, refers to…
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Investigating the ME/CFS experience through qualitative analysis of memorial entries
Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is an impairing chronic condition characterized by exhaustion and worsening symptoms following…
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“Post-exertional malaise (PEM)
“Post-exertional malaise (PEM), which is the cardinal feature of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), is also reported in…
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Hospital Support Pack for people with ME/CFS
A member of the ME/CFS community has provided this positive feedback of the pack being used in their…
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The Nightingale Continuum
People with ME/ICC often describe a progressive loss of functional capacity that can feel like “fading away,” as…
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Post-Exertional Malaise
Synopsis: “Post-Exertional Malaise is a debilitating condition that distinguishes Long Covid and ME/CFS from other illnesses. This video…