Beth Dobbin speaks about her experience of living with severe ME and the need for government investment in research
In an interview with the BBC, former Olympic Sprinter, Beth Dobbin has spoken about having severe ME and…
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Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed
George Monbiot Changes in guidance and science seem to have little impact on millions of devastated lives. It’s…
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Have you had Long COVID or ME/CFS for over 2 years?
HERITAGE (Health Effects fRom Infection sequelae: Tailoring services and Advancing GuidancE in Long Covid and ME/CFS) is a…
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Open Letter to the Royal College of Psychiatrists
Dear Prof. Subodh Dave, President-elect, 12 May, 2026thWe are writing on ME Awareness Day in relation to the…
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Grieving the life you had before M.E
Grieving the life you had before M.E. (as defined by the ICC) is not a side issue of…
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The prodromal phase in Myalgic Encephalomyelitis (ME)
The prodromal phase in Myalgic Encephalomyelitis (ME), as described in the International Consensus Criteria (ICC) context, refers to…
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Investigating the ME/CFS experience through qualitative analysis of memorial entries
Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is an impairing chronic condition characterized by exhaustion and worsening symptoms following…
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“Post-exertional malaise (PEM)
“Post-exertional malaise (PEM), which is the cardinal feature of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), is also reported in…
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Hospital Support Pack for people with ME/CFS
A member of the ME/CFS community has provided this positive feedback of the pack being used in their…
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The Nightingale Continuum
People with ME/ICC often describe a progressive loss of functional capacity that can feel like “fading away,” as…