Having Severe ME/CFS: A Report From Norway
In 2018, the Norwegian ME Association undertook a large survey of severely ill ME patients. We wanted to…
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Hospital update Alice Barrett’s tube feeding plan
Alice Barrett who is an inpatient at Royal Devon and Exeter Hospital was unable to lie at 30…
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An interview with the sister of Alice Barrett who needed urgent tube feeding
The sister of Alice Barrett has been interview by BBC South West about Alice’s need to be urgently…
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The Times 27.02.23 ME patients ‘risk dying of starvation’ under NHS care
Alice Barrett, 25, and Sami Berry, 43, are both suffering from severe METhe families of two women being…
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ME IN THE MEDIA
Exeter mum’s heartbreak as daughter, 27, loses severe ME battle The 27-year-old was sent home to be cared…
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Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Announcements
Statement My Rt Hon Friend the Secretary of State for Health and Social Care (Sajid Javid) has made…
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Tangled story of ME/CFS
Hard to believe that patients with ME have been treated so poorly for decades, but they have, and…
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Back to the Future? Immunoglobulin Therapy for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
The findings of controlled trials on use of intravenous immunoglobulin G (IV IgG) to treat myalgic encephalomyelitis/chronic fatigue…
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NICE ME/CFS Guideline 2021 (BMJ
ME/CFS: Exercise goals should be set by patients and not driven by treatment plan, says NICE NICE ME.CFS…
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Expert reaction to updated NICE guideline on diagnosis and management of ME/CFS
The National Institute for Health and Care Excellence (NICE) has published its updated guideline on the diagnosis and management…