Opposition to Oxford Health NHS Foundation Trust: “Coping with Coronavirus: Fatigue ”We, the undersigned, request immediate withdrawal of the Oxford Health NHS Foundation Trust leaflet “Coping with Coronavirus: Fatigue” for the following reasons….. https://25megroup.org/wp-content/uploads/2020/04/Opposition-to-Oxford-Fatigue-Leaflet.pdf
Conditions like chronic fatigue syndrome have been linked to viral infections, so it’s possible that the covid-19 virus may go on to trigger similar conditions https://www.newscientist.com/article/mg24632783-400-could-the-coronavirus-trigger-post-viral-fatigue-syndromes/#ixzz6Ji0drMeu
Use information for different areas with links to cover areas such as: Updated 9.4.2020 Suggestions of where to get help 1. Food delivery businesses 2. General 3. Advice for employers 4. Advice regarding ME 5. General Disability news 6. Worldwide updates https://onedrive.live.com/view.aspx?resid=CB2C4502C6DE2B56!341&ithint=file%2cdocx&authkey=!AKK8NkCa3_8vdk0
Special Issue Information Dear Colleagues, “ME/CFS—The Severely and Very Severely Affected” is a proposed themed Special Issue of Healthcare concerning housebound and bedbound Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) patients. Our intent is to redefine ME/CFS as the serious disease that it is. Up to this point in time, all literature Read more…
Very important. Please sign to protect the lives of disabled people. Let others see this post Click below where it says “view post” to see the full post and to access the link to read and sign the letter “…………… However, we have read about cases that have made us Read more…
Will COVID-19 Leave An Explosion of ME/CFS Cases in its Wake? The COVID-19 pandemic is squeezing our medical systems, whacking our economy, testing our leadership and our resources but at the bottom of it COVID-19 is one thing – it’s severe infection – and we know the role severe infections Read more…
Look after your mental wellbeing It’s always important to look after your mental health, but even more so at times like these when we are all faced with uncertainty and isolation. https://www.samh.org.uk/about-mental-health/self-help-and-wellbeing/coronavirus-and-your-mental-wellbeing Free Guide To Living With Worry And Anxiety Amidst Global Uncertainty https://www.psychologytools.com/articles/free-guide-to-living-with-worry-and-anxiety-amidst-global-uncertainty/?fbclid=IwAR10deIp0hUIJ5hZqD0XWSKDwdtXuTgNt_fpeuTii9waYN1XXcO4lBzIACw
LETTER TO SEND TO SHOPS TO HIGHLIGHT ISSUE OF SHOPPING PROBLEMS I have an illness known as M.E. (Myalgic Encephalomyelitis): this is described by the W.H.O. (World Health Organisation) as a neurological disease, making it similar to illnesses such as Multiple Sclerosis, Motor Neuron Disease and Parkinson’s. The NHS is Read more…
Useful medical information when treating COVID-19 in patients with underlyingmyalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and severe fibromyalgia (FM) If your patient has been diagnosed with ME/CFS/severe FM,you should assume they have a serious, chronic, multisystem illness that may negatively impact their prognosis. The intention of this letter is to provide Read more…
Coronavirus: Government ‘has abandoned’ disabled people on direct payments The government is facing accusations that its emergency planning for dealing with the coronavirus pandemic has “abandoned” disabled people who use direct payments to employ their own personal assistants (PAs). Although the government finally produced guidance for the social care sector Read more…