Call for people to take part in a ME research study
The ME Association is funding a study led by Prof Sarah Tyson of University of Manchester (who also has ME) to develop a clinical assessment toolkit in collaboration with people with ME and clinicians in ME services.
Thanks to everybody who took the time and energy to complete the TIMES questionnaire before Christmas.
The second questionnaire, (called the Post Activity Symptom Scale, PASS) to measure people’s PEM symptoms is now ready for testing. The research team are keen to get input from people with severe ME.
This is the link https://www.qualtrics.manchester.ac.uk/jfe/form/SV_cvaa1nmfhJVTflc
This questionnaire is shorter and simpler to complete then the TIMES one. It can be done in ‘chunks’ to enable pacing. It is fine to have someone to help you complete it. If you would prefer a paper copy or to ‘do’ the questionnaire by phone. That is fine. Just contact Sarah on sarah.tyson@manchester.ac.uk to arrange this.
The closing date for the survey is 29th March 2024.
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