#DecodeME Matters
#DecodeME Matters As many of you are aware our advocacy worker, Helen Baxter, has been assisting people with…
Having Severe ME/CFS: A Report From Norway
In 2018, the Norwegian ME Association undertook a large survey of severely ill ME patients. We wanted to…
Hospital update Alice Barrett’s tube feeding plan
Alice Barrett who is an inpatient at Royal Devon and Exeter Hospital was unable to lie at 30…
An interview with the sister of Alice Barrett who needed urgent tube feeding
The sister of Alice Barrett has been interview by BBC South West about Alice’s need to be urgently…
The Times 27.02.23 ME patients ‘risk dying of starvation’ under NHS care
Alice Barrett, 25, and Sami Berry, 43, are both suffering from severe METhe families of two women being…
ME IN THE MEDIA
Exeter mum’s heartbreak as daughter, 27, loses severe ME battle The 27-year-old was sent home to be cared…
Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Announcements
Statement My Rt Hon Friend the Secretary of State for Health and Social Care (Sajid Javid) has made…
Tangled story of ME/CFS
Hard to believe that patients with ME have been treated so poorly for decades, but they have, and…
Back to the Future? Immunoglobulin Therapy for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
The findings of controlled trials on use of intravenous immunoglobulin G (IV IgG) to treat myalgic encephalomyelitis/chronic fatigue…
NICE ME/CFS Guideline 2021 (BMJ
ME/CFS: Exercise goals should be set by patients and not driven by treatment plan, says NICE NICE ME.CFS…