M.E News

ME/CFS: Exercise goals should be set by patients and not driven by treatment plan, says NICE NICE ME.CFS Guideline 2021 (BMJ

The National Institute for Health and Care Excellence (NICE) has published its updated guideline on the diagnosis and management of myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS). https://www.sciencemediacentre.org/expert-reaction-to-updated-nice-guideline-on-diagnosis-and-management-of-me-cfs/

A health watchdog has scrapped a previous recommendation of graded exercise therapy for ME. The National Institute of Health and Care Excellence (NICE) has published a long-awaited and contentious final update to guidance on treatment. https://www.bbc.co.uk/news/health-59080007

Victory for campaigners as therapy they rated ‘harmful’ is taken off list of recommended treatments https://www.theguardian.com/society/2021/oct/29/health-watchdog-nice-publishes-delayed-me-guidance

EMBARGOED UNTIL: 00:01, 29 October 2021 PRESS RELEASE NICE ME/CFS guideline outlines steps for better diagnosis and management NICE has today (29 October 2021) published its updated guideline on the diagnosis and management of myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS). 2021 043 ME-CFS final guideline press release – FINAL2

This guideline covers diagnosing and managing myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS) in children, young people and adults. It aims to improve awareness and understanding about ME/CFS and when to suspect it, so that people are diagnosed earlier. It includes recommendations on diagnosis, assessment and care planning, safeguarding, access Read more…

Doctors with ME heartily welcome these new guidelines. In particular we welcome the emphasis on ME being a genuine medical condition. STATEMENT FROM DR

NICE Publishes new Guideline on ME/CFS*, driving major improvements in care Press Statement from Forward-ME, embargoed until publication of NICE guidelines. Press Release New NICE Guidelines on ME

The ME/CFS Priority Setting Partnership (PSP) is giving you the opportunity to define your top ten priorities for future ME/CFS research. 2021.10.20 Press Release – Choose your top ten – ME CFS PSP survey launched

NICE has today (20 October 2021) announced the next steps for publication of its updated guideline on the diagnosis and management of myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS). https://www.nice.org.uk/news/article/nice-announces-next-steps-for-publication-of-its-guideline-on-me-cfs