M.E News

Doctors with ME heartily welcome these new guidelines. In particular we welcome the emphasis on ME being a genuine medical condition. STATEMENT FROM DR

NICE Publishes new Guideline on ME/CFS*, driving major improvements in care Press Statement from Forward-ME, embargoed until publication of NICE guidelines. Press Release New NICE Guidelines on ME

The ME/CFS Priority Setting Partnership (PSP) is giving you the opportunity to define your top ten priorities for future ME/CFS research. 2021.10.20 Press Release – Choose your top ten – ME CFS PSP survey launched

NICE has today (20 October 2021) announced the next steps for publication of its updated guideline on the diagnosis and management of myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS). https://www.nice.org.uk/news/article/nice-announces-next-steps-for-publication-of-its-guideline-on-me-cfs

Update from Forward-ME on the upcoming round table event, hosted by the National Institute for Health and Care Excellence (NICE) next Monday (18 October), to ‘discuss key issues raised prior to publication’ of its paused guideline for M.E. https://www.actionforme.org.uk/news/forward-me-upcoming-nice-round-table/

Campaigners say that each day a health watchdog delays publishing new guidelines on ME “puts more people at risk”. https://www.thetimes.co.uk/article/delays-to-me-guidelines-are-putting-patients-at-risk-s5bzfhxjl

We call on the National Institute for Health and Care Excellence (NICE) to publish the finalised ME/CFS guideline in its current form.  https://www.change.org/p/the-national-institute-for-health-and-care-excellence-publish-the-nice-me-cfs-guideline-now

Trial By Error: A Letter Urging NICE to Publish ME/CFS Guideline Without Delay 1 September 2021 by David Tuller 19 Comments By David Tuller, DrPH This morning, I sent the following letter to Professor Gillian Leng, the chief executive of the National Institute for Health and Care Excellence. https://www.virology.ws/2021/09/01/trial-by-error-a-letter-urging-nice-to-publish-me-cfs-guideline-without-delay/?fbclid=IwAR1hYUeOkUHngtfuwvKjGqJ2CNFD1brTnhzv3ZkDu78xDoU42NVzlTToXLw

ME/CFS strikes 1 in 250 of us. It is a devastating illness, more disabling than angina or multiple sclerosis. Three quarters of sufferers are too ill to work or pursue education; a quarter are house- or bed-bound. Hundreds of thousands of lives are ruined; people who could otherwise be contributing to their communities Read more…

Trial By Error: NICE Squares Off Against Royal College Bullies Over New ME/CFS Guidelines 20 August 2021 By David Tuller, DrPH For many years, campaigners for psycho-behavioral interventions for ME/CFS have accused patients who objected to the research as being anti-scientific zealots. It was always a ridiculous charge, but developments Read more…