WHAT IS ME AWARENESS DAY? May 12th is a well known date in the ME world as it is International Awareness Day for Myalgic Encephalomyelitis. ME organisations and individuals around the world raise awareness about how ME affects those who have the illness https://25megroup.org/wp-content/uploads/2020/05/ME-awareness-day-2020.pdf
This year marks the 25 year anniversary of the 25% ME Group, the only charity concerned specifically with the needs of the severely affected. https://25megroup.org/wp-content/uploads/2020/03/international-ME-newsletter.pdf
A Painfully Nuanced Life: The impact of profound Multiple Chemical Sensitivity in Severe ME. (Published in the latest edition of “MCS Aware Magazine”) ‘How can I convey to you that I live in a totally different world than you, even if I am in the same room as you, even Read more…
The National Institute for Health and Care Excellence – commonly abbreviated to ‘NICE’ – have recently begun the process of developing a new guideline on the diagnosis and management of ‘ME/CFS’ for use by health and social care professionals. In view of the problems with the existing guideline, the 25% Read more…
Sound the fanfares!! We are delighted to launch our new website, which is now live, and also to apologise for any inconvenience caused to members, as our old site had to be suspended for a few weeks since it was not GDPR compliant, and also to enable construction of the Read more…
If you want to raise awareness of the cover up of our serious neurological disease, please share a photo with us. If you can, get a photo taken of yourself with a sheet over, in whatever way can be tolerated or managed, whether it is a photo in bed, a Read more…
People with Severe ME are rightly outraged by the latest in a long line of misrepresentative articles suggesting that their disease is a fatigue condition. People are suffering and have been suffering for decades as a result of the misdirection of ME away from a WHO defined neurological disease.(Hooper et Read more…