25% ME Group at IACFSME Conference

Published by Simon Lawrence on

25% ME Group at IACFSME Conference

Advocacy worker, Helen Baxter attended the International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (IACFSME) Conference at the end of July and did a presentation entitled ‘How to ensure the Voice of the Severely affected ME/CFS patient is heard in research’. She showed that with reasonable adjustments, such as assisting patients to complete questionnaires by telephone/text it is possible to enable patients with very severe ME to participate in research. She has shared a copy of her slides from the conference.

Powerpoint presentation

1 Comment

News from the 25% ME Group – The ME Global Chronicle · 19/12/2022 at 8:51 PM

[…] talk both in terms of representing the charity but also bringing severe ME into the spotlight. A copy of my slides is available on 25% ME Group […]

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