“Post-exertional malaise (PEM)
“Post-exertional malaise (PEM), which is the cardinal feature of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), is also reported in…
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Hospital Support Pack for people with ME/CFS
A member of the ME/CFS community has provided this positive feedback of the pack being used in their…
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The Nightingale Continuum
People with ME/ICC often describe a progressive loss of functional capacity that can feel like “fading away,” as…
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Post-Exertional Malaise
Synopsis: “Post-Exertional Malaise is a debilitating condition that distinguishes Long Covid and ME/CFS from other illnesses. This video…
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Neurovascular dysfunction is a core, increasingly well-supported feature of Myalgic Encephalomyelitis (M.E.)
Neurovascular dysfunction is a core, increasingly well-supported feature of Myalgic Encephalomyelitis (M.E.), especially when M.E. is understood as…
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People with ME often have difficulty carrying on a two-way conversation
People with ME often have difficulty carrying on a two-way conversation not because of disinterest or anxiety, but…
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Speaking Your Body’s Truth: Talking to Providers About Post-Exertional Symptom Exacerbation
Overview The article addresses the difficult reality many people with Long COVID, ME/CFS, POTS, and other complex chronic…
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In the Long Run, Misleading Participants Will Harm More Than Help in Long COVID Research
Respect for persons, beneficence, and justice are bedrock ethical principles in science. They are especially important when studying…
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ME/CFS Autopsy Study Finds a Wrecked HPA Axis: The 2025 IACFS/ME Conference Report #3
How timely Dr. Da Silva’s presentation on “Delineating clinical phenotypes and HPA-axis dysfunction in ME/CFS” at the 2025…
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BROKEN BATTERY
Tessa Munt MP: “ME is perhaps the only condition where the sicker you become, the less care you…