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Have you had Long COVID or ME/CFS for over 2 years?

Posted on M.E News

HERITAGE (Health Effects fRom Infection sequelae: Tailoring services and Advancing GuidancE in Long Covid and ME/CFS) is a £1.4 million UK-wide NIHR-funded study designed to improve understanding, care and NHS service provision for Long Covid and ME/CFS. The study is mentioned in the DHSC Delivery Plan for ME/CFS. NIHR award website.

The study will recruit 3,000 participants: 2,000 from specialist NHS services across four participating sites and 1,000 from the wider UK-wide community who are not currently receiving specialist NHS care.

By including both groups, we aim to better understand differences in patient experiences, access to care and unmet need. Long Covid and ME/CFS are common, often disabling conditions, yet access to specialist services remains inconsistent across the UK.

HERITAGE will:

  • Improve understanding of the overlap between Long Covid and ME/CFS.
  • Evaluate different models of specialist care.
  • Inform the development of a future National Service Framework (NSF) for these conditions.

How you can help

Please share the attached recruitment poster, social media graphics and study links through your networks. You are also welcome to reshare posts from the HERITAGE social media channels.

Facebook, LinkedIn, BlueSky, Twitter/X and YouTube

Your organisation would act solely as an information gatekeeper. You will not be asked to identify participants or share any personal data.

For further information, please visit the HERITAGE website or contact the study team at heritage-studyteam@leeds.ac.uk

Thank you for your support. I will update you once recruitment has reached our target.

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