Trial By Error: A Letter Urging NICE to Publish ME/CFS Guideline Without Delay 1 September 2021 by David Tuller 19 Comments By David Tuller, DrPH This morning, I sent the following letter to Professor Gillian Leng, the chief executive of Read more…
ME/CFS strikes 1 in 250 of us. It is a devastating illness, more disabling than angina or multiple sclerosis. Three quarters of sufferers are too ill to work or pursue education; a quarter are house- or bed-bound. Hundreds of thousands of lives are Read more…
Trial By Error: NICE Squares Off Against Royal College Bullies Over New ME/CFS Guidelines 20 August 2021 By David Tuller, DrPH For many years, campaigners for psycho-behavioral interventions for ME/CFS have accused patients who objected to the research as being Read more…
SNP MP Carol Monaghan has slammed the National Institute for HealthCare Excellence (NICE) for delaying its promised guideline on the diagnosis and management of Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS). Monaghan, who is chair of the all-party parliamentary Read more…
We are very disappointed to hear of the ‘pause’ in publication of the NICE ME/CFS Guideline, already delayed in April. Following the hard work of the Guideline Development Group, we received news of the further delay of guideline publication with Read more…
NICE has today (17 August 2021) taken the decision to pause publication of its updated guideline on the diagnosis and management of myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS). MECFS – statement on publication delay 17Aug2021
We are shocked and hugely disappointed to hear that the long-awaited NICE guidelines have been unexpectedly delayed at the last minute. NICE DELAY TO NEW GUIDELINES
The ME Association is pleased to announce the establishment of the Howes Goudsmit Prize for Severe ME research. This award has been created because of a very generous donation from Dr Ellen Goudsmit, a disabled scientist who helped to create Read more…
Position Statement 2021 NICE Guideline Update on Treatment and Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Position Statement – NICE 2021 guideline (1)
A major project is looking for your input. They want to know what research you think should be funded in the future, and the deadline for adding your ideas is fast approaching. Your responses must be in by Monday 5th Read more…