Dialogues for a neglected illness – or Dialogues for ME/CFS is a new project being made with an award from the Wellcome Public Engagement Fund. More information here. The project will consist of a website with a collection of about a dozen new short Read more…
A singer seriously ill with a severe form of ME has asked musicians and studio technicians to help finish her debut album. https://www.bbc.co.uk/news/uk-england-derbyshire-52647259
Last year on his birthday, we presented Alem Matthees with an award and framed certificate on behalf of the Australian ME/CFS community, and state and national ME/CFS organisations. Alem was being honoured for his extraordinary contribution in fighting for information Read more…
More than 21,000 Scots suffer from ME which is also known as chronic fatigue syndrome Scottish ministers are being urged to withdraw a controversial treatment that is prescribed on the NHS to treat myalgic encephalomyelitis (ME) but is blamed for Read more…
WHAT IS ME AWARENESS DAY? May 12th is a well known date in the ME world as it is International Awareness Day for Myalgic Encephalomyelitis. ME organisations and individuals around the world raise awareness about how ME affects those who Read more…
A. whereas the Committee on Petitions has received several petitions raising concerns over the absence of treatments and the current underfunding of biomedical research on myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) within the EU; https://www.europarl.europa.eu/meetdocs/2014_2019/plmrep/COMMITTEES/PETI/RE/2020/04-30/1200263EN.pdf
The Countess of Mar, Britain’s only female hereditary peer, is stepping down from the House of Lords after 45 years As the only female hereditary peer in the House of Lords, at first glance the grandly-titled Countess of Mar would Read more…
Press Releases PETI Today An estimate of 2 million Europeans affected by the disease EU research remains fragmented and lacks coordination ME/CFS is still poorly understood and consequently, underdiagnosed https://www.europarl.europa.eu/news/en/press-room/20200425IPR77906/underfunding-of-biomedical-research-into-myalgic-encephalomyelitisis-unjustified
Why is this important? The Government has chosen to ‘focus on new claimants’ by providing an extra £20 a week for people claiming Universal Credit. By doing this, they are discriminating against millions of disabled people on other out of Read more…
Opposition to Oxford Health NHS Foundation Trust: “Coping with Coronavirus: Fatigue ”We, the undersigned, request immediate withdrawal of the Oxford Health NHS Foundation Trust leaflet “Coping with Coronavirus: Fatigue” for the following reasons….. https://25megroup.org/wp-content/uploads/2020/04/Opposition-to-Oxford-Fatigue-Leaflet.pdf