The Scottish Govermnet have provided an email update on implementing undertakings given by the Cabinet Secretary to the Scottish Parliament Petitions Committee. The main poits being – 1.In light of the forthcoming NICE review the Scottish Government has advised that Read more…
As an immediately relevant and useful tool for medical professionals and students receiving notice of these updates, it would be effective to include reference to the following online CPD module for improving basic practice approach for patients presenting with symptom Read more…
Thoughtful post by Naomi Whittingham who reflects on living through the lockdown as someone who has effectively had to live through their own lockdown due to severe ME for decades https://alifehidden.com/2020/04/09/lockdown
As charities supporting people with M.E. we have been actively campaigning for NICE to remove the recommendation of Graded Exercise Therapy (GET) and Cognitive Behavioural Therapy (CBT) in the guideline for M.E./CFS. Patient surveys conducted by charities and groups including Read more…
We are extremely concerned that some medical/care professionals and sports/exercise specialists are still recommending exercise programmes and/or graded exercise therapy (GET) to people who suffer from ME without even adding very prominent warnings about the harm that exercise can cause Read more…
A current problem regarding Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is the large proportion of doctors that are either not trained or refuse to recognize ME/CFS as a genuine clinical entity, and as a result do not diagnose it. https://www.mdpi.com/2227-9032/8/3/211?fbclid=IwAR2vSLjQuoc9j-Lb6bMgP2GedyO2suHBpWmAoKVFDKHyZIsNYurfVijCyTY
Could COVID-19 trigger chronic disease in some people? A handful of viruses have been associated with long-term, debilitating symptoms in a subset of those who become infected. Early signs hint that SARS-CoV-2 may do the same. https://www.ibtimes.com/fauci-warns-post-viral-syndrome-among-covid-19-patients-causes-fatigue-brain-fog-3012876
Myalgic encephalomyelitis is an acquired neurological disease with complex global dysfunctions. Pathological dysregulation of the nervous, immune and endocrine systems, with impaired cellular energy metabolism and ion transport are prominent features. Although signs and symptom are dynamically interactive and causally Read more…
Many people with severe Myalgic Encephalopathy/Chronic Fatigue Syndrome (ME/CFS) commonly receive no care from healthcare professionals, while some have become distanced from all statutory medical services. healthcare-08-00197
This helps explain scientifically something everyone with ME knows. Pacing enough to avoid PENE is very hard and for the more severe it can be impossible. It does have guidance as to how to pace with more understanding of what Read more…