New report on the most serious ME-sick Between 2500 and 5000 ME-sufferers have severe or very serious ME, and receive little to no follow-up in the health sector. “Very few have wanted to take them,” said scientist. A recent report Read more…
Topline findings A new patient survey of 2274 respondents has confirmed that graded exercise therapy (GET) is harming a large majority of people with ME receiving this treatment in the UK. A majority of people with ME report that cognitive Read more…
The Backbench Business Committee has granted a debate on ME. It will take place on the afternoon of Thursday 24th January. It would be helpful if you could encourage the community to approach their MPs to request their support. Any Read more…
Introduction As a doctor, and perhaps especially as a junior doctor, there will no doubt be occasions when you are overwhelmed by the demands placed upon you. Times when you will feel powerless in the face of suffering and frustrated Read more…
On International Day of People with Disability, please note some disabilities are invisible. Also some disabling conditions (e.g. chronic illnesses, chronic pain conditions) can fluctuate. Me: I don’t need a wheelchair for very short distances, but do for longer ones. Read more…
A Painfully Nuanced Life: The impact of profound Multiple Chemical Sensitivity in Severe ME. (Published in the latest edition of “MCS Aware Magazine”) ‘How can I convey to you that I live in a totally different world than you, even Read more…
August 01, 2018 The latest update to the electronic health records system used by GPs in England was launched yesterday, listing M.E. as a neurological disorder. Previously it had sat under the headings Mental Disorder (which was removed in 2015) Read more…
The National Institute for Health and Care Excellence – commonly abbreviated to ‘NICE’ – have recently begun the process of developing a new guideline on the diagnosis and management of ‘ME/CFS’ for use by health and social care professionals. In Read more…
Over a hundred academics, patient groups, lawyers, and politicians have now signed an open letter to the Lancet calling on the journal to commission an independent reanalysis of the data from the PACE trial—a study into treatment for myalgic encephalomyelitis (ME)/chronic fatigue Read more…
There is clear evidence that ME is not the same as depression or any other psychiatric disorder. In 2015, the influential USA Institute of Medicine, stressed that ME is a medical, not a psychiatric or psychological illness.(IOM 2015) Neuroinflammation has Read more…