LETTER TO SEND TO SHOPS TO HIGHLIGHT ISSUE OF SHOPPING PROBLEMS I have an illness known as M.E. (Myalgic Encephalomyelitis): this is described by the W.H.O. (World Health Organisation) as a neurological disease, making it similar to illnesses such as Read more…
Useful medical information when treating COVID-19 in patients with underlyingmyalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and severe fibromyalgia (FM) If your patient has been diagnosed with ME/CFS/severe FM,you should assume they have a serious, chronic, multisystem illness that may negatively impact Read more…
Coronavirus: Government ‘has abandoned’ disabled people on direct payments The government is facing accusations that its emergency planning for dealing with the coronavirus pandemic has “abandoned” disabled people who use direct payments to employ their own personal assistants (PAs). Although Read more…
To ask the Secretary of State for Health and Social Care, if he will take steps to expand NHS specialist chronic fatigue syndrome services in (a) Sussex (b) Kent and (c) other areas across the UK; and if he will Read more…
This year marks the 25 year anniversary of the 25% ME Group, the only charity concerned specifically with the needs of the severely affected. https://25megroup.org/wp-content/uploads/2020/03/international-ME-newsletter.pdf
The Invisible Ones This is a very powerful video about Severe ME (from Sweden) SEE HERE
GREAT NEWS regarding my complaint to the GMC about the PACE authors The Information Commissioner’s Office [ICO] has slapped a Decision Notice on the GMC. The GMC must release the evidence base for its determination not to investigate the PACE Read more…
New report on the most serious ME-sick Between 2500 and 5000 ME-sufferers have severe or very serious ME, and receive little to no follow-up in the health sector. “Very few have wanted to take them,” said scientist. A recent report Read more…
Topline findings A new patient survey of 2274 respondents has confirmed that graded exercise therapy (GET) is harming a large majority of people with ME receiving this treatment in the UK. A majority of people with ME report that cognitive Read more…
The Backbench Business Committee has granted a debate on ME. It will take place on the afternoon of Thursday 24th January. It would be helpful if you could encourage the community to approach their MPs to request their support. Any Read more…