A Painfully Nuanced Life: The impact of profound Multiple Chemical Sensitivity in Severe ME. (Published in the latest edition of “MCS Aware Magazine”) ‘How can I convey to you that I live in a totally different world than you, even Read more…
August 01, 2018 The latest update to the electronic health records system used by GPs in England was launched yesterday, listing M.E. as a neurological disorder. Previously it had sat under the headings Mental Disorder (which was removed in 2015) Read more…
The National Institute for Health and Care Excellence – commonly abbreviated to ‘NICE’ – have recently begun the process of developing a new guideline on the diagnosis and management of ‘ME/CFS’ for use by health and social care professionals. In Read more…
Over a hundred academics, patient groups, lawyers, and politicians have now signed an open letter to the Lancet calling on the journal to commission an independent reanalysis of the data from the PACE trial—a study into treatment for myalgic encephalomyelitis (ME)/chronic fatigue Read more…
There is clear evidence that ME is not the same as depression or any other psychiatric disorder. In 2015, the influential USA Institute of Medicine, stressed that ME is a medical, not a psychiatric or psychological illness.(IOM 2015) Neuroinflammation has Read more…
Sound the fanfares!! We are delighted to launch our new website, which is now live, and also to apologise for any inconvenience caused to members, as our old site had to be suspended for a few weeks since it was Read more…
If you want to raise awareness of the cover up of our serious neurological disease, please share a photo with us. If you can, get a photo taken of yourself with a sheet over, in whatever way can be tolerated Read more…
Exercise & ME/CFS event at Bristol Watershed. Presentations from the “Exercise and ME/CFS” evening in Bristol on Feb 5th at the Watershed – with Prof Mark VanNess, Dr Nigel Speight and Erinna Bowman following a screening of “Voices from the Read more…
People with Severe ME are rightly outraged by the latest in a long line of misrepresentative articles suggesting that their disease is a fatigue condition. People are suffering and have been suffering for decades as a result of the misdirection Read more…