Severe ME Difrifol Cymru
We were really encouraged by the support we had from the many Senedd Members (MSs) who visited the…
Key genetic differences found in people with chronic fatigue syndrome.
Abstract Myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) is a common, poorly understood disease that has no effective…
UK Government Publishes Final Delivery Plan to Transform ME/CFS Care and Research
On 22 July 2025, the UK Government released its Final Delivery Plan for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS),…
Third delay to ME care plan prompts backlash from patients
The health department failed to explain the postponement to its long-awaited strategy for treating chronic fatigue syndrome which…
No 10 Backs Down on Welfare Bill Amid Labour Rebellion
The UK government has signaled a significant retreat on its proposed welfare reforms following mounting pressure from within…
Labour MPs Rebel Against Welfare Cuts: Disabled People Urged to Act Now
Over 100 Labour MPs are rebelling against the UK government’s proposed Welfare Reform Bill, which could strip support…
Hope is the biomedical not biopsychosocial approach for ME/CFS
The published article Patients with severe ME/CFS need hope and expert multidisciplinary care by Miller et al. (14…
Suffolk and North East Essex Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and Long Covid Service Contract Award
Suffolk and North East Essex Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and Long Covid Service Contract Award The NHS…
book review: ME/CFS Warrior: A Pain and Symptom Tracking Journal for Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS)
A GAME CHANGER Myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) can be a real pain in the butt,…
Book Review: More Notes for Carers by Greg Crowhurst
I was in my late 30’s when my wife was diagnosed as having Severe ME. In a couple…