Very important. Please sign to protect the lives of disabled people. Let others see this post Click below where it says “view post” to see the full post and to access the link to read and sign the letter “…………… However, we have read about cases that have made us Read more…
Will COVID-19 Leave An Explosion of ME/CFS Cases in its Wake? The COVID-19 pandemic is squeezing our medical systems, whacking our economy, testing our leadership and our resources but at the bottom of it COVID-19 is one thing – it’s severe infection – and we know the role severe infections Read more…
Look after your mental wellbeing It’s always important to look after your mental health, but even more so at times like these when we are all faced with uncertainty and isolation. https://www.samh.org.uk/about-mental-health/self-help-and-wellbeing/coronavirus-and-your-mental-wellbeing Free Guide To Living With Worry And Anxiety Amidst Global Uncertainty https://www.psychologytools.com/articles/free-guide-to-living-with-worry-and-anxiety-amidst-global-uncertainty/?fbclid=IwAR10deIp0hUIJ5hZqD0XWSKDwdtXuTgNt_fpeuTii9waYN1XXcO4lBzIACw
LETTER TO SEND TO SHOPS TO HIGHLIGHT ISSUE OF SHOPPING PROBLEMS I have an illness known as M.E. (Myalgic Encephalomyelitis): this is described by the W.H.O. (World Health Organisation) as a neurological disease, making it similar to illnesses such as Multiple Sclerosis, Motor Neuron Disease and Parkinson’s. The NHS is Read more…
Useful medical information when treating COVID-19 in patients with underlyingmyalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and severe fibromyalgia (FM) If your patient has been diagnosed with ME/CFS/severe FM,you should assume they have a serious, chronic, multisystem illness that may negatively impact their prognosis. The intention of this letter is to provide Read more…
Coronavirus: Government ‘has abandoned’ disabled people on direct payments The government is facing accusations that its emergency planning for dealing with the coronavirus pandemic has “abandoned” disabled people who use direct payments to employ their own personal assistants (PAs). Although the government finally produced guidance for the social care sector Read more…
To ask the Secretary of State for Health and Social Care, if he will take steps to expand NHS specialist chronic fatigue syndrome services in (a) Sussex (b) Kent and (c) other areas across the UK; and if he will make a statement. https://www.theyworkforyou.com/wrans/?id=2020-03-10.27580.h
The Invisible Ones This is a very powerful video about Severe ME (from Sweden) SEE HERE
GREAT NEWS regarding my complaint to the GMC about the PACE authors The Information Commissioner’s Office [ICO] has slapped a Decision Notice on the GMC. The GMC must release the evidence base for its determination not to investigate the PACE authors or admit that there was no evidence base for Read more…
New report on the most serious ME-sick Between 2500 and 5000 ME-sufferers have severe or very serious ME, and receive little to no follow-up in the health sector. “Very few have wanted to take them,” said scientist. A recent report from the NORWEGIAN Me Association has mapped those most AFFECTED Read more…