As lockdown eases, those of us with chronic illnesses must not be left behind
During this pandemic, we have seen a spotlight shone brightly on chronic illness like never before. That those…
Lingering Symptoms, Long-Term Damage: For Some, It’s A COVID-19 Recovery Reality
This is a radio podcast on Post Covid Syndrome that was broadcast yesterday. It is very good and…
Chronic fatigue syndrome: ME families accused of child abuse
Hundreds of families whose children suffer from the debilitating condition ME have faced child protection investigations in the…
The DecodeME DNA study
We have secured funding for a very large study to analyse DNA from the saliva of people with…
My friend chose an assisted death in Switzerland. Her dying wish was to tell you why
(CNN)Shortly after 11 a.m. on December 16, 2019, Cindy Siegel Shepler drew her last breath in a spartan…
Dialogues for a neglected illness – or Dialogues for ME/CFS
Dialogues for a neglected illness – or Dialogues for ME/CFS is a new project being made with an award from the…
Kara Jane Spencer: Severely ill singer seeks help finishing album
A singer seriously ill with a severe form of ME has asked musicians and studio technicians to help…
Australian ME/CFS advocacy award honours Alem Matthees
Last year on his birthday, we presented Alem Matthees with an award and framed certificate on behalf of…
ME sufferers demand end to exercise treatment
More than 21,000 Scots suffer from ME which is also known as chronic fatigue syndrome Scottish ministers are…
European Parliament resolution on additional funding for biomedical research on Myalgic Encephalomyelitis
A. whereas the Committee on Petitions has received several petitions raising concerns over the absence of treatments and…