Exeter mum’s heartbreak as daughter, 27, loses severe ME battle The 27-year-old was sent home to be cared for by her mum An urgent plea for change has been heartbreakingly conveyed by a mother who desperately tried to care for her 27-year-old daughter who died while battling severe Myalgic Encephalomyelitis Read more…
Statement My Rt Hon Friend the Secretary of State for Health and Social Care (Sajid Javid) has made the following written statement: Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) affects the lives of children and adults across the country. It can be an incredibly disabling condition with fluctuating symptoms making Read more…
Hard to believe that patients with ME have been treated so poorly for decades, but they have, and the stirring story of their resilience and unwillingness to be forgotten is brilliantly portrayed in these videos. If you really want to know about the most serious health challenge facing our planet, Read more…
The findings of controlled trials on use of intravenous immunoglobulin G (IV IgG) to treat myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) are generally viewed as representing mixed results. On detailed review, a clearer picture emerges, which suggests that the potential therapeutic value of this intervention has been underestimated. https://www.mdpi.com/2227-9032/9/11/1546
ME/CFS: Exercise goals should be set by patients and not driven by treatment plan, says NICE NICE ME.CFS Guideline 2021 (BMJ
The National Institute for Health and Care Excellence (NICE) has published its updated guideline on the diagnosis and management of myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS). https://www.sciencemediacentre.org/expert-reaction-to-updated-nice-guideline-on-diagnosis-and-management-of-me-cfs/
A health watchdog has scrapped a previous recommendation of graded exercise therapy for ME. The National Institute of Health and Care Excellence (NICE) has published a long-awaited and contentious final update to guidance on treatment. https://www.bbc.co.uk/news/health-59080007
Victory for campaigners as therapy they rated ‘harmful’ is taken off list of recommended treatments https://www.theguardian.com/society/2021/oct/29/health-watchdog-nice-publishes-delayed-me-guidance
EMBARGOED UNTIL: 00:01, 29 October 2021 PRESS RELEASE NICE ME/CFS guideline outlines steps for better diagnosis and management NICE has today (29 October 2021) published its updated guideline on the diagnosis and management of myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS). 2021 043 ME-CFS final guideline press release – FINAL2
This guideline covers diagnosing and managing myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS) in children, young people and adults. It aims to improve awareness and understanding about ME/CFS and when to suspect it, so that people are diagnosed earlier. It includes recommendations on diagnosis, assessment and care planning, safeguarding, access Read more…