The woman being denied the NHS care she needs to treat her ME
This is the inpatient experience of a patient with very severe ME, whose father Michael Gordon gave an…
DecodeME: the largest study into the causes of ME/CFS – Add your voice!
DecodeME: the largest study into the causes of ME/CFS – Add your voice! DecodeME launched in September 2022, and…
We Live With A Monster A Myalgic Encephalomyelitis (M.E.) Story
Sharon Tiday said on Twitter: For a while now people have told me that I should get this…
A life cut short by medical neglect
A life cut short by medical neglect: interview with Sarah Boothby, whose daughter Maeve died at 27 of…
Thousands of ME patients ‘failed by shockingly poor NHS care’
National treatment guidelines published two years ago are still not widely implemented, says charity Kat Lay, Health Editor…
ME/CFS CPD | Module
ME/CFS CPD | Module https://www.studyprn.com/p/chronic-fatigue-syndrome A message from course author, Dr Nina Muirhead BA (Oxon), BMBCh (Oxon), MRCS…
#DecodeME Matters
#DecodeME Matters As many of you are aware our advocacy worker, Helen Baxter, has been assisting people with…
Having Severe ME/CFS: A Report From Norway
In 2018, the Norwegian ME Association undertook a large survey of severely ill ME patients. We wanted to…
Hospital update Alice Barrett’s tube feeding plan
Alice Barrett who is an inpatient at Royal Devon and Exeter Hospital was unable to lie at 30…
An interview with the sister of Alice Barrett who needed urgent tube feeding
The sister of Alice Barrett has been interview by BBC South West about Alice’s need to be urgently…