ME/CFS CPD | Module https://www.studyprn.com/p/chronic-fatigue-syndrome A message from course author, Dr Nina Muirhead BA (Oxon), BMBCh (Oxon), MRCS HOHNS, MEd, PGCipDerm ME/CFS is one of the most fascinating and important diseases of our time. In writing this module I have started from scratch. I drew on the international peer reviewed Read more…
#DecodeME Matters As many of you are aware our advocacy worker, Helen Baxter, has been assisting people with severe and very severe ME to participate in the DecodeME Study by completing the questionnaire over the telephone with participants who can’t complete it online/on a paper copy. Helen was invited, by Read more…
In 2018, the Norwegian ME Association undertook a large survey of severely ill ME patients. We wanted to look at symptom burden and disease severity, access to help and care, and how the carers experienced their condition. The answers we received were shocking, showing both how serious the disease is, Read more…
Alice Barrett who is an inpatient at Royal Devon and Exeter Hospital was unable to lie at 30 degrees to be tube fed in line with hospital policy. The hospital have now amended Alice’s tube feeding plan to factor this in. https://www.bbc.co.uk/news/uk-england-devon-64830022
The sister of Alice Barrett has been interview by BBC South West about Alice’s need to be urgently tube fed lying flat. Our medical advisor, Dr Weir is also on the interview. You can watch the interview https://www.youtube.com/watch?v=KySoy0vm6jc
Alice Barrett, 25, and Sami Berry, 43, are both suffering from severe METhe families of two women being treated in NHS hospitals fear that they are at risk of dying fromstarvation.Alice Barrett, 25, has severe myalgic encephalomyelitis (ME) and is being cared for by Royal Devon University Healthcare NHS Foundation Read more…
Exeter mum’s heartbreak as daughter, 27, loses severe ME battle The 27-year-old was sent home to be cared for by her mum An urgent plea for change has been heartbreakingly conveyed by a mother who desperately tried to care for her 27-year-old daughter who died while battling severe Myalgic Encephalomyelitis Read more…
Statement My Rt Hon Friend the Secretary of State for Health and Social Care (Sajid Javid) has made the following written statement: Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) affects the lives of children and adults across the country. It can be an incredibly disabling condition with fluctuating symptoms making Read more…
Hard to believe that patients with ME have been treated so poorly for decades, but they have, and the stirring story of their resilience and unwillingness to be forgotten is brilliantly portrayed in these videos. If you really want to know about the most serious health challenge facing our planet, Read more…
The findings of controlled trials on use of intravenous immunoglobulin G (IV IgG) to treat myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) are generally viewed as representing mixed results. On detailed review, a clearer picture emerges, which suggests that the potential therapeutic value of this intervention has been underestimated. https://www.mdpi.com/2227-9032/9/11/1546