Thousands of ME patients ‘failed by shockingly poor NHS care’
National treatment guidelines published two years ago are still not widely implemented, says charity Kat Lay, Health Editor…
ME/CFS CPD | Module
ME/CFS CPD | Module https://www.studyprn.com/p/chronic-fatigue-syndrome A message from course author, Dr Nina Muirhead BA (Oxon), BMBCh (Oxon), MRCS…
#DecodeME Matters
#DecodeME Matters As many of you are aware our advocacy worker, Helen Baxter, has been assisting people with…
Having Severe ME/CFS: A Report From Norway
In 2018, the Norwegian ME Association undertook a large survey of severely ill ME patients. We wanted to…
Hospital update Alice Barrett’s tube feeding plan
Alice Barrett who is an inpatient at Royal Devon and Exeter Hospital was unable to lie at 30…
An interview with the sister of Alice Barrett who needed urgent tube feeding
The sister of Alice Barrett has been interview by BBC South West about Alice’s need to be urgently…
The Times 27.02.23 ME patients ‘risk dying of starvation’ under NHS care
Alice Barrett, 25, and Sami Berry, 43, are both suffering from severe METhe families of two women being…
25% ME Group at The Malnutrition Task Force Sharing Practice Day
Our advocacy worker, Helen Baxter, did a talk on preventing avoidable malnutrition in severe ME at The Malnutrition…
ME IN THE MEDIA
Exeter mum’s heartbreak as daughter, 27, loses severe ME battle The 27-year-old was sent home to be cared…
Feedback on survey
Many of you took part in the surveys put together by the James Lind Alliance ME/CFS Priority Setting…