ME IN THE MEDIA
Exeter mum’s heartbreak as daughter, 27, loses severe ME battle The 27-year-old was sent home to be cared…
Feedback on survey
Many of you took part in the surveys put together by the James Lind Alliance ME/CFS Priority Setting…
Course of illness survey 2022 (Norwegian ME Association
Participation request! Please help the Norwegian ME Association (Norges Myalgisk Encefalopati Forening) gather crucial information about ME/CFS by…
The IACFSME conference
The IACFSME conference was covered by journalist, Miriam Tucker, who chose to focus an article on our advocacy…
25% ME Group at IACFSME Conference
25% ME Group at IACFSME Conference Advocacy worker, Helen Baxter attended the International Association for Chronic Fatigue Syndrome/Myalgic…
Ensuring the Voice of the Very Severely Affected Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patient Is Heard in Research—A Research Model.
Abstract Most of the research about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) has focused on ambulant patients who are…
NICE outlines steps needed to put ME/CFS guideline into practice
Implementation Statement from The National Institute for Health and Care Excellence NICE has today, International ME Awareness Day…
Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Announcements
Statement My Rt Hon Friend the Secretary of State for Health and Social Care (Sajid Javid) has made…
The Top 10+ Research Priorities in ME/CFS- The James Lind Alliance Priority Setting Partnership
James Lind Alliance Priority Setting Partnership – Results: The Top 10+ priorities for research around ME / CFS…
ME AWARENESS 2022
ME Awareness 2022 “Core Guidance NG206: Key extracts from the ME/CFS guideline published by NICE October 2021, with…