#EndMalnutritioninME

The 25% ME Group is campaigning for better care to prevent malnutrition in people with severe ME. The #EndMalnutritioninME campaign has a Twitter account. Follow us at @MalnutritionME. Thank you to all health professionals who care for people with #SevereME. #NHS75 Read this article to understand how to prevent malnutrition Read more…

ME IN THE MEDIA

Exeter mum’s heartbreak as daughter, 27, loses severe ME battle The 27-year-old was sent home to be cared for by her mum An urgent plea for change has been heartbreakingly conveyed by a mother who desperately tried to care for her 27-year-old daughter who died while battling severe Myalgic Encephalomyelitis Read more…

ME AWARENESS 2022

ME Awareness 2022 “Core Guidance NG206: Key extracts from the ME/CFS guideline published by NICE October 2021, with a focus on changes that are required and the care and support of severely affected patients. Also highlights the health professional’s duty, in complying with the law on informed consent, to explain Read more…

MEDIA STATEMENT

NICE has today (17 August 2021) taken the decision to pause publication of its updated guideline on the diagnosis and management of myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS). MECFS – statement on publication delay 17Aug2021