25% ME Group stance on exercise

We are extremely concerned that some medical/care professionals and sports/exercise specialists are still recommending exercise programmes and/or graded exercise therapy (GET) to people who suffer from ME without even adding very prominent warnings about the harm that exercise can cause to ME sufferers – especially those with severe ME 25% Read more…

Severe ME in Children

A current problem regarding Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is the large proportion of doctors that are either not trained or refuse to recognize ME/CFS as a genuine clinical entity, and as a result do not diagnose it. https://www.mdpi.com/2227-9032/8/3/211?fbclid=IwAR2vSLjQuoc9j-Lb6bMgP2GedyO2suHBpWmAoKVFDKHyZIsNYurfVijCyTY

ICC Definition for M.E.

Myalgic encephalomyelitis is an acquired neurological disease with complex global dysfunctions. Pathological dysregulation of the nervous, immune and endocrine systems, with impaired cellular energy metabolism and ion transport are prominent features. Although signs and symptom are dynamically interactive and causally connected, the criteria are grouped by regions of pathophysiology to Read more…

Energy systems and pacing in ME/CFS

This helps explain scientifically something everyone with ME knows. Pacing enough to avoid PENE is very hard and for the more severe it can be impossible. It does have guidance as to how to pace with more understanding of what is gong wrong. https://chronicallycaroline.com/2020/06/29/energy-systems-and-pacing-in-me-cfs/?fbclid=IwAR13J-vcISBUH2DqUq4mEArx1dmvlFJ2eB8bFg4oLgmGucOf9sg0Hd0_-Zk