Disabled people on direct payments

Coronavirus: Government ‘has abandoned’ disabled people on direct payments The government is facing accusations that its emergency planning for dealing with the coronavirus pandemic has “abandoned” disabled people who use direct payments to employ their own personal assistants (PAs). Although the government finally produced guidance for the social care sector Read more…

ME Question in Parliament

To ask the Secretary of State for Health and Social Care, if he will take steps to expand NHS specialist chronic fatigue syndrome services in (a) Sussex (b) Kent and (c) other areas across the UK; and if he will make a statement. https://www.parliament.uk/business/publications/written-questions-answers-statements/written-question/Commons/2020-03-10/27580/ Caroline Lucas

Norwegian ME Report

New report on the most serious ME-sick Between 2500 and 5000 ME-sufferers have severe or very serious ME, and receive little to no follow-up in the health sector. “Very few have wanted to take them,” said scientist. A recent report from the NORWEGIAN Me Association has mapped those most AFFECTED Read more…

ME DEBATE IN PARLIAMENT

The Backbench Business Committee has granted a debate on ME. It will take place on the afternoon of Thursday 24th January. It would be helpful if you could encourage the community to approach their MPs to request their support. Any briefings would also be appreciated. The motion to be debated Read more…

The Power of Listening

Introduction As a doctor, and perhaps especially as a junior doctor, there will no doubt be occasions when you are overwhelmed by the demands placed upon you.  Times when you will feel powerless in the face of suffering and frustrated by the limitations of medicine.  What you might not realise Read more…