The long march by patients to prove that the official treatment for ME/CFS was wrong and damaging

A long-running battle between patients and therapists over the best way to treat debilitating chronic fatigue was won by the patients back at the beginning of November. In a dramatic U-turn, the NICE guidelines on the best way to treat ME (Myalgic Encephalitis)/ CFS (Chronic Fatigue Syndrome) were reversed. https://healthinsightuk.org/2020/12/23/the-long-march-by-patients-to-prove-that-the-official-treatment-for-mecfs-was-wrong-and-damaging-repost/

Research on severe ME

“Profile of circulating microRNAs in myalgic encephalomyelitis and their relation to symptom severity, and disease pathophysiology https://www.nature.com/articles/s41598-020-76438-y?fbclid=IwAR3LphYMqzLHxrPpSoxFwYqs15J8x8LSTKvspThsTjiy8v6orYWKmtkgfFw

25% ME Group stance on exercise

We are extremely concerned that some medical/care professionals and sports/exercise specialists are still recommending exercise programmes and/or graded exercise therapy (GET) to people who suffer from ME without even adding very prominent warnings about the harm that exercise can cause to ME sufferers – especially those with severe ME 25% Read more…