25% ME Group, ME Association, Action for ME and BRAME have collaborated to produce a resource Supporting People with ME/CFS in hospital. As charities, we have been approached by individuals anticipating going into hospital, hence why we produced it. The resource is designed so that you can give the relevant Read more…
Lee McGill (DHSC) joined the Research Working Group today to share an update on the Delivery Plan. We were pleased to hear there has been considerable work happening in the background to process the extremely high level of qualitative data and feedback received and took a long time to process. Read more…
The All-Party Parliamentary Group on ME (APPG) has launched its inquiry into Severe ME. Action for M.E., the ME Association, and the 25% M.E. Group will be working closely to support the APPG throughout the inquiry’s duration. The purpose of the inquiry is to gather evidence to inform a chapter Read more…
In response to requests, the Royal College of Anaesthetics have produced a two page summary of the ME and Anaesthesia Factsheet. Go to https://www.rcoa.ac.uk/patients/patient-information-resources/factsheets-medical-conditions-relating-anaesthesia/me-cfs-anaesthesia-summary
The ME Association is funding a study led by Prof Sarah Tyson of University of Manchester (who also has ME) to develop a clinical assessment toolkit in collaboration with people with ME and clinicians in ME services. Thanks to everybody who took the time and energy to complete the PROMS Read more…
The Team at the Royal College of Anaesthetists have kindly done a transcript of the podcast on Anaesthesia and ME with Dr Anton Krige, Consultant Anaesthetist, Dr Charles Shephard from the MEA and Helen Baxter, advocacy worker at 25% ME Group. https://www.rcoa.ac.uk/events-professional-development/education-professional-development/rcoa-podcasts/perioperative-management-patients-me-long-covid
This podcast from the Royal College of Anaesthetists focuses on ME and Anaesthesia. Dr Anton Kruge, Dr Charles Shepherd and Helen Baxter discuss ME and anaesthesia https://audioboom.com/posts/8472161-the-perioperative-management-of-patients-with-me-and-long-covid
The ME Association is funding a study led by Prof Sarah Tyson of University of Manchester (who also has ME) to develop a clinical assessment toolkit in collaboration with people with ME and clinicians in ME services. Thanks to everybody who took the time and energy to complete the TIMES Read more…
This resource aims to provide people with ME/CFS who need to have an anaesthetic or sedation with information about what they might expect at the different stages of the surgical journey, and what they can do to prepare, in collaboration with their healthcare teams. It has been produced in collaboration Read more…
For many years the definition of ME/CFS has been wrongly placed in the medical textbook by Kumar & Clark. This textbook is used for educating health professionals and is dipped into by doctors and nurses as it’s user friendly. Currently, it has ME/CFS in psychiatry. Some individuals have put pressure Read more…