A long-running battle between patients and therapists over the best way to treat debilitating chronic fatigue was won by the patients back at the beginning of November. In a dramatic U-turn, the NICE guidelines on the best way to treat Read more…
Who would have thought? We knew that National Institute for Health and Care Excellence (NICE) – the executive branch in the U. responsible for producing treatment guidelines – was reconsidering its guidelines for ME (ME/CFS, chronic fatigue syndrome). Still, it Read more…
“Profile of circulating microRNAs in myalgic encephalomyelitis and their relation to symptom severity, and disease pathophysiology https://www.nature.com/articles/s41598-020-76438-y?fbclid=IwAR3LphYMqzLHxrPpSoxFwYqs15J8x8LSTKvspThsTjiy8v6orYWKmtkgfFw
For the past 30 years, still another group has suffered from the trauma of an illness and then society’s reaction to their disability. The illness is chronic fatigue syndrome. These patients, who prefer the less-stigmatizing term myalgic encephalomyelitis, have a Read more…
The Scottish Govermnet have provided an email update on implementing undertakings given by the Cabinet Secretary to the Scottish Parliament Petitions Committee. The main poits being – 1.In light of the forthcoming NICE review the Scottish Government has advised that Read more…
As an immediately relevant and useful tool for medical professionals and students receiving notice of these updates, it would be effective to include reference to the following online CPD module for improving basic practice approach for patients presenting with symptom Read more…
Thoughtful post by Naomi Whittingham who reflects on living through the lockdown as someone who has effectively had to live through their own lockdown due to severe ME for decades https://alifehidden.com/2020/04/09/lockdown
As charities supporting people with M.E. we have been actively campaigning for NICE to remove the recommendation of Graded Exercise Therapy (GET) and Cognitive Behavioural Therapy (CBT) in the guideline for M.E./CFS. Patient surveys conducted by charities and groups including Read more…
We are extremely concerned that some medical/care professionals and sports/exercise specialists are still recommending exercise programmes and/or graded exercise therapy (GET) to people who suffer from ME without even adding very prominent warnings about the harm that exercise can cause Read more…
A current problem regarding Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is the large proportion of doctors that are either not trained or refuse to recognize ME/CFS as a genuine clinical entity, and as a result do not diagnose it. https://www.mdpi.com/2227-9032/8/3/211?fbclid=IwAR2vSLjQuoc9j-Lb6bMgP2GedyO2suHBpWmAoKVFDKHyZIsNYurfVijCyTY