Veterans with concerns related to Gulf War illness have a lot in common with ME/CFS patients, so my advice to them is the same. See the article below. https://www.nova.edu/nim/To-Vaccinate-or-Not-with-MECFS.html
STATEMENT ON VACCINATION CHOICE BY MEDICAL ADVISORS 25% Group members are naturally asking for advice as to whether or not to accept the offer of the new Covid 19 vaccine https://25megroup.org/download/1796/?v=3663
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Organic Disease or Psychosomatic Illness? A Re-Examination of the Royal Free Epidemic of 1955 https://pubmed.ncbi.nlm.nih.gov/33375343/
A long-running battle between patients and therapists over the best way to treat debilitating chronic fatigue was won by the patients back at the beginning of November. In a dramatic U-turn, the NICE guidelines on the best way to treat Read more…
Who would have thought? We knew that National Institute for Health and Care Excellence (NICE) – the executive branch in the U. responsible for producing treatment guidelines – was reconsidering its guidelines for ME (ME/CFS, chronic fatigue syndrome). Still, it Read more…
“Profile of circulating microRNAs in myalgic encephalomyelitis and their relation to symptom severity, and disease pathophysiology https://www.nature.com/articles/s41598-020-76438-y?fbclid=IwAR3LphYMqzLHxrPpSoxFwYqs15J8x8LSTKvspThsTjiy8v6orYWKmtkgfFw
For the past 30 years, still another group has suffered from the trauma of an illness and then society’s reaction to their disability. The illness is chronic fatigue syndrome. These patients, who prefer the less-stigmatizing term myalgic encephalomyelitis, have a Read more…
The Scottish Govermnet have provided an email update on implementing undertakings given by the Cabinet Secretary to the Scottish Parliament Petitions Committee. The main poits being – 1.In light of the forthcoming NICE review the Scottish Government has advised that Read more…
As an immediately relevant and useful tool for medical professionals and students receiving notice of these updates, it would be effective to include reference to the following online CPD module for improving basic practice approach for patients presenting with symptom Read more…
Thoughtful post by Naomi Whittingham who reflects on living through the lockdown as someone who has effectively had to live through their own lockdown due to severe ME for decades https://alifehidden.com/2020/04/09/lockdown