The Countess of Mar, Britain’s only female hereditary peer, is stepping down from the House of Lords after 45 years As the only female hereditary peer in the House of Lords, at first glance the grandly-titled Countess of Mar would Read more…
Press Releases PETI Today An estimate of 2 million Europeans affected by the disease EU research remains fragmented and lacks coordination ME/CFS is still poorly understood and consequently, underdiagnosed https://www.europarl.europa.eu/news/en/press-room/20200425IPR77906/underfunding-of-biomedical-research-into-myalgic-encephalomyelitisis-unjustified
Why is this important? The Government has chosen to ‘focus on new claimants’ by providing an extra £20 a week for people claiming Universal Credit. By doing this, they are discriminating against millions of disabled people on other out of Read more…
Opposition to Oxford Health NHS Foundation Trust: “Coping with Coronavirus: Fatigue ”We, the undersigned, request immediate withdrawal of the Oxford Health NHS Foundation Trust leaflet “Coping with Coronavirus: Fatigue” for the following reasons….. https://25megroup.org/wp-content/uploads/2020/04/Opposition-to-Oxford-Fatigue-Leaflet.pdf
Conditions like chronic fatigue syndrome have been linked to viral infections, so it’s possible that the covid-19 virus may go on to trigger similar conditions https://www.newscientist.com/article/mg24632783-400-could-the-coronavirus-trigger-post-viral-fatigue-syndromes/#ixzz6Ji0drMeu
Use information for different areas with links to cover areas such as: Updated 9.4.2020 Suggestions of where to get help 1. Food delivery businesses 2. General 3. Advice for employers 4. Advice regarding ME 5. General Disability news 6. Worldwide Read more…
Special Issue Information Dear Colleagues, “ME/CFS—The Severely and Very Severely Affected” is a proposed themed Special Issue of Healthcare concerning housebound and bedbound Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) patients. Our intent is to redefine ME/CFS as the serious disease that Read more…
Very important. Please sign to protect the lives of disabled people. Let others see this post Click below where it says “view post” to see the full post and to access the link to read and sign the letter “…………… Read more…
Will COVID-19 Leave An Explosion of ME/CFS Cases in its Wake? The COVID-19 pandemic is squeezing our medical systems, whacking our economy, testing our leadership and our resources but at the bottom of it COVID-19 is one thing – it’s Read more…
Look after your mental wellbeing It’s always important to look after your mental health, but even more so at times like these when we are all faced with uncertainty and isolation. https://www.samh.org.uk/about-mental-health/self-help-and-wellbeing/coronavirus-and-your-mental-wellbeing Free Guide To Living With Worry And Anxiety Read more…