A major project is looking for your input. They want to know what research you think should be funded in the future, and the deadline for adding your ideas is fast approaching. Your responses must be in by Monday 5th Read more…
Response to letter in Times: https://www.thetimes.co.uk/article/why-is-britain-now-the-capital-of-long-covid-grjpvzfvw Dear Editor This report was both disappointing and poorly researched in the way it presented the worldwide prevalence of Long Covid and the incorrect accusation that Long Covid had become so prevalent in the Read more…
That this House marks the retirement of the Countess of Mar as the Founding Chair of Forward-ME; congratulates her on the success of Forward-ME which was established in 2008 to promote effective joint working between charities and organisations in order Read more…
Abstract Very severe Myalgic Encephalomyelitis (ME), (also known as Chronic Fatigue Syndrome) can lead to problems with nutrition and hydration. The reasons can be an inability to swallow, severe gastrointestinal problems tolerating food or the patient being too debilitated to Read more…
How to Understand Segami Brain SPECT on M.E. and toxic chemical injury patients. At the request of many M.E. patients and their physicians, they have requested that I send them more information on Segami brain SPECT. This newsletter contains information Read more…
[Written Answers] Coronavirus: Vaccination ———————— Alex Sobel To ask the Secretary of State for Health and Social Care, what assessment his Department has made of the potential merits of prioritising people with myalgic encephalomyelitis for covid-19 vaccinations. https://25megroup.org/download/1010/?v=3791
HEALTH Learn about M.E. – free CPD training for health professionals in the UK GENERAL New support for professionals on managing ME-CFS and Long Covid GPs, medical students and allied health professionals in the UK can now access free online Read more…
We are excited to announce a new international research study looking at the impact of ME/CFS on the quality of life of both patients and their family members. A questionnaire is available to complete to take part https://redcap.link/MECFSFamilyImpactStudy?fbclid=IwAR32BdQR4MxWgYtDKr0-39wW3av8XADFtc3PP9xIzZwBzdqKrz9wuTfHmfg
M.E. charity statement on the Covid vaccine We are receiving a very high number of enquiries from people with M.E. asking if they should have the Covid-19 vaccine, and when they should expect to be offered it. The 25% M.E. Read more…
Charity response to the NICE draft guidelines December 2020 https://25megroup.org/download/2302/?v=3673