James Lind Alliance Priority Setting Partnership – Results: The Top 10+ priorities for research around ME / CFS have been identified by the Partnership. These priorities have been determined as a result of two surveys and workshops engaging with people Read more…
ME Awareness 2022 “Core Guidance NG206: Key extracts from the ME/CFS guideline published by NICE October 2021, with a focus on changes that are required and the care and support of severely affected patients. Also highlights the health professional’s duty, Read more…
Hard to believe that patients with ME have been treated so poorly for decades, but they have, and the stirring story of their resilience and unwillingness to be forgotten is brilliantly portrayed in these videos. If you really want to Read more…
E D I T . The video has been viewed over 250 times in the last 24 hours! 。 Here it is! The 25% ME Group’s Season’s greetings video. Why not send it with individualised messages to each of your Read more…
The findings of controlled trials on use of intravenous immunoglobulin G (IV IgG) to treat myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) are generally viewed as representing mixed results. On detailed review, a clearer picture emerges, which suggests that the potential therapeutic Read more…
ME/CFS: Exercise goals should be set by patients and not driven by treatment plan, says NICE NICE ME.CFS Guideline 2021 (BMJ
The National Institute for Health and Care Excellence (NICE) has published its updated guideline on the diagnosis and management of myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS). https://www.sciencemediacentre.org/expert-reaction-to-updated-nice-guideline-on-diagnosis-and-management-of-me-cfs/
A health watchdog has scrapped a previous recommendation of graded exercise therapy for ME. The National Institute of Health and Care Excellence (NICE) has published a long-awaited and contentious final update to guidance on treatment. https://www.bbc.co.uk/news/health-59080007
Victory for campaigners as therapy they rated ‘harmful’ is taken off list of recommended treatments https://www.theguardian.com/society/2021/oct/29/health-watchdog-nice-publishes-delayed-me-guidance
EMBARGOED UNTIL: 00:01, 29 October 2021 PRESS RELEASE NICE ME/CFS guideline outlines steps for better diagnosis and management NICE has today (29 October 2021) published its updated guideline on the diagnosis and management of myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome Read more…