A health watchdog has scrapped a previous recommendation of graded exercise therapy for ME. The National Institute of Health and Care Excellence (NICE) has published a long-awaited and contentious final update to guidance on treatment. https://www.bbc.co.uk/news/health-59080007
Victory for campaigners as therapy they rated ‘harmful’ is taken off list of recommended treatments https://www.theguardian.com/society/2021/oct/29/health-watchdog-nice-publishes-delayed-me-guidance
EMBARGOED UNTIL: 00:01, 29 October 2021 PRESS RELEASE NICE ME/CFS guideline outlines steps for better diagnosis and management NICE has today (29 October 2021) published its updated guideline on the diagnosis and management of myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome Read more…
This guideline covers diagnosing and managing myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS) in children, young people and adults. It aims to improve awareness and understanding about ME/CFS and when to suspect it, so that people are diagnosed earlier. It Read more…
Doctors with ME heartily welcome these new guidelines. In particular we welcome the emphasis on ME being a genuine medical condition. STATEMENT FROM DR
NICE Publishes new Guideline on ME/CFS*, driving major improvements in care Press Statement from Forward-ME, embargoed until publication of NICE guidelines. Press Release New NICE Guidelines on ME
The ME/CFS Priority Setting Partnership (PSP) is giving you the opportunity to define your top ten priorities for future ME/CFS research. 2021.10.20 Press Release – Choose your top ten – ME CFS PSP survey launched
NICE has today (20 October 2021) announced the next steps for publication of its updated guideline on the diagnosis and management of myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS). https://www.nice.org.uk/news/article/nice-announces-next-steps-for-publication-of-its-guideline-on-me-cfs
Update from Forward-ME on the upcoming round table event, hosted by the National Institute for Health and Care Excellence (NICE) next Monday (18 October), to ‘discuss key issues raised prior to publication’ of its paused guideline for M.E. https://www.actionforme.org.uk/news/forward-me-upcoming-nice-round-table/
Campaigners say that each day a health watchdog delays publishing new guidelines on ME “puts more people at risk”. https://www.thetimes.co.uk/article/delays-to-me-guidelines-are-putting-patients-at-risk-s5bzfhxjl