ICC Definition for M.E.
Myalgic encephalomyelitis is an acquired neurological disease with complex global dysfunctions. Pathological dysregulation of the nervous, immune and…
Health Care Responsibility and Compassion-Visiting the Housebound Patient Severely Affected by ME/CFS
Many people with severe Myalgic Encephalopathy/Chronic Fatigue Syndrome (ME/CFS) commonly receive no care from healthcare professionals, while some…
Energy systems and pacing in ME/CFS
This helps explain scientifically something everyone with ME knows. Pacing enough to avoid PENE is very hard and…
As lockdown eases, those of us with chronic illnesses must not be left behind
During this pandemic, we have seen a spotlight shone brightly on chronic illness like never before. That those…
Lingering Symptoms, Long-Term Damage: For Some, It’s A COVID-19 Recovery Reality
This is a radio podcast on Post Covid Syndrome that was broadcast yesterday. It is very good and…
Chronic fatigue syndrome: ME families accused of child abuse
Hundreds of families whose children suffer from the debilitating condition ME have faced child protection investigations in the…
The DecodeME DNA study
We have secured funding for a very large study to analyse DNA from the saliva of people with…
My friend chose an assisted death in Switzerland. Her dying wish was to tell you why
(CNN)Shortly after 11 a.m. on December 16, 2019, Cindy Siegel Shepler drew her last breath in a spartan…
Dialogues for a neglected illness – or Dialogues for ME/CFS
Dialogues for a neglected illness – or Dialogues for ME/CFS is a new project being made with an award from the…
Kara Jane Spencer: Severely ill singer seeks help finishing album
A singer seriously ill with a severe form of ME has asked musicians and studio technicians to help…