The long march by patients to prove that the official treatment for ME/CFS was wrong and damaging
A long-running battle between patients and therapists over the best way to treat debilitating chronic fatigue was won…
GET This! NICE Pulls the Plug on Graded Exercise Therapy and CBT asTreatments for ME/CFS
Who would have thought? We knew that National Institute for Health and Care Excellence (NICE) – the executive…
Research on severe ME
“Profile of circulating microRNAs in myalgic encephalomyelitis and their relation to symptom severity, and disease pathophysiology https://www.nature.com/articles/s41598-020-76438-y?fbclid=IwAR3LphYMqzLHxrPpSoxFwYqs15J8x8LSTKvspThsTjiy8v6orYWKmtkgfFw
The Long Hauler Tragedy: More Frightening than Halloween Nightmares
For the past 30 years, still another group has suffered from the trauma of an illness and then…
Scottish Good Practice Statement on ME-CFS
The Scottish Govermnet have provided an email update on implementing undertakings given by the Cabinet Secretary to the…
Myalgic Encephalomyelitis / Chronic Fatigue Syndrome CPD
As an immediately relevant and useful tool for medical professionals and students receiving notice of these updates, it…
“Life in Lockdown: What Matters When All Is Lost”
Thoughtful post by Naomi Whittingham who reflects on living through the lockdown as someone who has effectively had…
Charities request for the removal oF harmful treatments
As charities supporting people with M.E. we have been actively campaigning for NICE to remove the recommendation of…
25% ME Group stance on exercise
We are extremely concerned that some medical/care professionals and sports/exercise specialists are still recommending exercise programmes and/or graded…
Severe ME in Children
A current problem regarding Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is the large proportion of doctors that are either…