Could COVID-19 trigger chronic disease in some people? A handful of viruses have been associated with long-term, debilitating symptoms in a subset of those who become infected. Early signs hint that SARS-CoV-2 may do the same. https://www.ibtimes.com/fauci-warns-post-viral-syndrome-among-covid-19-patients-causes-fatigue-brain-fog-3012876
Myalgic encephalomyelitis is an acquired neurological disease with complex global dysfunctions. Pathological dysregulation of the nervous, immune and endocrine systems, with impaired cellular energy metabolism and ion transport are prominent features. Although signs and symptom are dynamically interactive and causally Read more…
Many people with severe Myalgic Encephalopathy/Chronic Fatigue Syndrome (ME/CFS) commonly receive no care from healthcare professionals, while some have become distanced from all statutory medical services. healthcare-08-00197
This helps explain scientifically something everyone with ME knows. Pacing enough to avoid PENE is very hard and for the more severe it can be impossible. It does have guidance as to how to pace with more understanding of what Read more…
During this pandemic, we have seen a spotlight shone brightly on chronic illness like never before. That those with pre-existing health conditions and the elderly are most likely to be significantly affected by Covid-19, means we have come together to Read more…
This is a radio podcast on Post Covid Syndrome that was broadcast yesterday. It is very good and the neglect of ME and the gaslighting of patients is blamed for the lack of knowledge about Post Covid Syndrome. Click on Read more…
Hundreds of families whose children suffer from the debilitating condition ME have faced child protection investigations in the past decade, The Times has learnt. https://www.thetimes.co.uk/article/chronic-fatigue-syndrome-me-families-accused-of-child-abuse-np968v9dt
We have secured funding for a very large study to analyse DNA from the saliva of people with ME/CFS to see whether the disease is partly genetic and if so, help pinpoint what causes it. The study should help us Read more…
(CNN)Shortly after 11 a.m. on December 16, 2019, Cindy Siegel Shepler drew her last breath in a spartan room in Basel, Switzerland. The 62-year-old American twisted a knob on her IV pole and soon fell asleep for the last time. Read more…
Dialogues for a neglected illness – or Dialogues for ME/CFS is a new project being made with an award from the Wellcome Public Engagement Fund. More information here. The project will consist of a website with a collection of about a dozen new short Read more…