25% ME Group at IACFSME Conference
25% ME Group at IACFSME Conference
Advocacy worker, Helen Baxter attended the International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (IACFSME) Conference at the end of July and did a presentation entitled ‘How to ensure the Voice of the Severely affected ME/CFS patient is heard in research’. She showed that with reasonable adjustments, such as assisting patients to complete questionnaires by telephone/text it is possible to enable patients with very severe ME to participate in research. She has shared a copy of her slides from the conference.
