Papers By The 25% M.E Group Patrons, Trustees & Advisers
Purpose: To explore the historical misrepresentation of Myalgic Encephalomyelitis (ME) as merely “fatigue,” highlighting the scientific evidence that supports its classification as a chronic neurological disease. Key Points: Origins of Misrepresentation: ME was historically dismissed as “fatigue syndrome,” overshadowing the broader neurological symptoms such as muscle pain, cognitive issues, and impaired circulation. Lack of understanding…
Purpose: To highlight the groundbreaking research on B-cell depletion therapy for severely affected Myalgic Encephalomyelitis (ME) patients, emphasizing the potential benefits, clinical findings, and future research directions. Key Points: Accidental Discovery: Norwegian oncologists, Dr. Øystein Fluge and Professor Olav Mella, observed “major symptom relief” in a cancer patient with severe ME undergoing chemotherapy. This led…
Purpose: To establish that Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a physical disorder, countering efforts to classify it as a psychiatric or behavioral condition. Key Points: WHO and Official Recognition: The WHO confirmed in 2014 that ME/CFS is not classified as a mental or behavioral disorder in ICD-10 or proposed for ICD-11. The UK government…
Purpose: To discuss the clinical features, potential causes, and management strategies for Myalgic Encephalomyelitis (ME), emphasizing the importance of early rest and understanding of the condition. Key Points: Clinical Features: ME often follows a viral infection and presents with persistent fatigue, muscle weakness, headaches, blurred vision, and neurological symptoms such as difficulty concentrating and memory…
Purpose: To examine the long-term impacts of Myalgic Encephalomyelitis (ME), its parallels with Post-Polio Syndrome, and the need for improved recognition, research, and management strategies. Key Points: Nature of ME: ME is a chronic neurological illness caused by enteroviral infections, leading to multi-system impacts, including skeletal, cardiac, and endocrine organ damage. Symptoms include overwhelming fatigue,…
Purpose: This document is a joint submission from the 25% ME Group for the Severely Affected and Stonebird. It raises concerns about the inclusion of Myalgic Encephalomyelitis (ME) in the proposed categories of Complex Somatic Symptom Disorder (CSSD) and Simple Somatic Symptom Disorder (SSSD) in the DSM-V. The authors argue that these categorizations would misrepresent…