MERUK promote and fund research into ME (Myalgic Encephalomyelitis), CFS (Chronic Fatigue Syndrome) and related illnesses; they also aim to improve public understanding and to provide education and support into these conditions.
The 25% M.E Group, with the aid of Dr Vance Spence and MERUK, will seek to provide information packs in the future on certain subjects. These then can be used to provide alternative ‘evidence’, giving guidance on how people with severe M.E. should be treated by different professionals
MERUK – The Gateway – North Methven Street – Perth – PH1 5PP
A collection of articles by Margaret Williams and Professor Malcolm Hooper together with related documents written by other people (for example, the Countess of Mar, Professor George Szmukler, Professor Simon Wessely, Professor Michael Sharpe, as well as official reports and the PACE trial protocol). These articles have been available on the internet or elsewhere for many years but now for the first time have been brought together in one place. Margaret Williams is the pen-name used by someone who spent her professional life in the British National Health Service (NHS), latterly in a senior clinical capacity for many years until severe ME put an end to her career. For professional and personal reasons she does not wish her own name to be in the public domain. Malcolm Hooper is Emeritus Professor of Medicinal Chemistry at the University of Sunderland in the UK, and is an advocate for ME/CFS patients. He chaired the International Invest in ME Conference in 2008, 2010, and 2011. He is also the Chief Scientific Adviser to the British Gulf War Veterans Association.
Unfortunately, the majority of physicians in the UK, Europe and North America, not to mention the rest of the world, have a poor and sometimes distorted idea of what Myalgic Encephalomyelitis represents. One of the several fallacies is that M.E. is just another name for Chronic Fatigue Syndrome (CFS). It is not and never has been. M.E. is a biphasic epidemic and sporadic enteroviral infectious disease. Up to 1955 and the introduction of Jonas Salk’s polio immunization M.E. tended to occur in the same location and at the same time as polio epidemics. In epidemic form, both Polio and M.E. tend to peak in the north temperate hemisphere during the period of July to November, with a last small blip around Christmas when families tend to get together.
The Definition & History of Myalgic Encephalomyelitis (M.E.)
This monograph was prepared for the Amsterdam M.E. Conference September 2015. It has not been adequately spell and grammar checked by my staff. For this I apologize to the readers. There are undoubtedly errors also in composition but the story is essentially valid, as is the much overlooked history Of Myalgic Encephalomyelitis. Byron Hyde MD, The Nightingale Research Foundation