Summary of Scottish Parliament ME Questions and Answers – April 2025

This document marks International ME Awareness Day 2025, celebrated annually on May 12th. It highlights the efforts and impact of ME Research UK, a Perth-based charity dedicated to funding and commissioning biomedical research on myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS). Key points include:

• ME Research UK Achievements: Over 25 years, the charity has invested over £4.5 million in 68 global research projects, supported four PhD-level research projects, and funded a Fellowship program.
• Global Outreach: ME Research UK is the largest non-North American funder of ME/CFS studies, supporting projects in countries including Australia, France, Germany, and the UK.
• Funding and Awareness: The charity is sustained entirely by individual donations and is committed to addressing the under-researched and often misunderstood nature of ME/CFS.
• Parliamentary Motion: The motion commends the organization’s work in advancing ME/CFS research and enhancing global understanding of this chronic condition, which affects over 20,000 people in Scotland.

This summary reflects Scotland’s continuing commitment to raising awareness and fostering biomedical research to improve the lives of ME/CFS patients.