Scottish Parliament

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Long Covid: Scottish Parliamentary Debate Highlights (May 19, 2022)

Summary: This document captures key discussions from the Scottish Parliament’s debate on Long Covid, emphasizing its parallels with Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS). Key points include: Historical Context of ME: John Mason (Glasgow Shettleston) highlighted the timeline of ME, tracing its recognition from 1934 (atypical polio) to its reclassification as CFS in…

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ME Education in Scotland: Challenges and Advocacy

Summary: This document, prepared by the 25% ME Group, highlights the challenges in medical education regarding Myalgic Encephalomyelitis (ME) in Scotland and the advocacy efforts of the “Taking ME Forward” (TMEF) initiative. Key points include: Medical School Curricula: A review of curricula at five Scottish medical schools revealed significant gaps in ME education. Only two…

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ME Education in Scotland: Challenges and Advocacy

Summary: This document, prepared by the 25% ME Group, highlights the challenges in medical education regarding Myalgic Encephalomyelitis (ME) in Scotland and the advocacy efforts of the “Taking ME Forward” (TMEF) initiative. Key points include: Medical School Curricula: A review of curricula at five Scottish medical schools revealed significant gaps in ME education. Only two…

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The Lothian Clinic: A Cautionary Tale from Tymes Trust

Summary: This document outlines the timeline and challenges surrounding the establishment of the Lothian ME-CFS pilot service, highlighting key events and concerns. Key points include: Initial Funding and Planning: In January 2011, NHS Lothian allocated a recurring investment of £25,000 for ME-CFS work. Meetings with stakeholders, including Action for ME, informed the development of the…

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ME in Scotland: 2012 Update on Cross Party Group Activities

Summary: This document provides an overview of the Cross Party Group (CPG) on Myalgic Encephalomyelitis (ME) in Scotland during 2012, highlighting key meetings, events, and initiatives. Key points include: CPG Meetings: January 19, 2012: Focused on establishing six working groups addressing areas such as healthcare needs, GP education, and welfare reform. Feedback from the 25%…

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MSPs and ME Matters: A Guide to Parliamentary Engagement (July 2010)

Summary: This document, prepared by Helen Brownlie on behalf of the 25% ME Group, serves as a guide for lobbying Members of the Scottish Parliament (MSPs) on issues related to Myalgic Encephalomyelitis (ME). Key highlights include: Purpose: The guide lists MSPs who have shown interest or involvement in ME-related matters, including participation in parliamentary events,…

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Open Letter to Standards Committee: Concerns Over Cross Party Group on ME

Summary: This document, dated September 25, 2012, addresses concerns regarding the Cross Party Group (CPG) on Myalgic Encephalomyelitis (ME) in Scotland. Key points include: Vote on Remit: A vote held on September 19, 2012, overwhelmingly supported focusing the CPG on neurological ME. However, within 24 hours, an email circulated proposing a second vote, raising questions…

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Parliamentary Business and Myalgic Encephalomyelitis: Scottish Progress to July 2010

Summary: This document explores the Scottish Parliament’s work on Myalgic Encephalomyelitis (ME) advocacy and policy, spanning petitions, parliamentary debates, and progress reports. Key points include: Petition by Cross Party Group: Lodged in October 2001, the petition called for a strategic needs review, accurate data collection on ME/CFS patients, and the establishment of a center of…