Douglas South MHK Claire Christian raised concerns about support for individuals with Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS) in Tynwald. Key points include: Interim Syndrome Service: Christian questioned whether an interim service for ME/CFS had been established and how its success would be measured. She sought clarity on targets set for the service’s…
Chronic Fatigue Syndrome (CFS), also known as Myalgic Encephalomyelitis (ME), requires specialized and patient-centered healthcare services. Below are the key elements of such services: Specialist Clinics: Clinics dedicated to CFS/ME provide tailored care, encompassing symptom assessment and management strategies. Interventions may include pacing techniques, physiotherapy, occupational therapy, and psychological support as needed. Access and Disparities:…
Exercise for individuals with Chronic Fatigue Syndrome (CFS), also known as Myalgic Encephalomyelitis (ME), requires careful planning and sensitivity due to the risk of exacerbating symptoms. Below are the key points: Graded Exercise Therapy (GET): Historically recommended, GET involves gradually increasing physical activity levels. However, patient feedback and studies have raised concerns about its effectiveness…
The Isle of Man is making significant progress in establishing a dedicated service for individuals with Myalgic Encephalomyelitis (ME), Chronic Fatigue Syndrome (CFS), and Long Covid. Below are the key highlights: Integrated Support: The service aims to provide multidisciplinary care, including early diagnosis, comprehensive assessments, and targeted interventions
Exercise for individuals with Chronic Fatigue Syndrome (CFS), also known as Myalgic Encephalomyelitis (ME), requires careful planning and sensitivity due to the risk of exacerbating symptoms. Below are the key points: Graded Exercise Therapy (GET): Historically recommended, GET involves gradually increasing physical activity levels. However, patient feedback and studies have raised concerns about its effectiveness…
ME in Parliament – John McDonnell MP: This discusses John McDonnell MP’s advocacy for ME patients during a Westminster Hall debate. He raised concerns about Personal Independence Payment (PIP) assessments and called for reforms to benefit systems for individuals with ME Westminster Watch – YouTube: A YouTube channel delivering news, highlights, and moments from the…
Chronic Fatigue Syndrome (CFS), also known as Myalgic Encephalomyelitis (ME), has limited treatment options, focusing primarily on symptom management. Below are the key highlights: Symptom Management: Medications such as pain relievers, sleep aids, and antidepressants may be prescribed to address specific symptoms. Lifestyle adjustments, including pacing and energy conservation, are essential for managing daily activities….
Research into Chronic Fatigue Syndrome (CFS), also known as Myalgic Encephalomyelitis (ME), continues to evolve, focusing on understanding its biological basis and developing effective treatments. Key highlights include: Metabolic and Immunological Studies: Emerging evidence suggests disruptions in energy metabolism and immune system function among ME/CFS patients. Investigations into mitochondrial dysfunction and chronic inflammation are advancing…
Chronic Fatigue Syndrome (CFS), also known as Myalgic Encephalomyelitis (ME), significantly impacts patients’ health and quality of life. Below are the key points regarding its health aspects: Symptoms and Impact: Core symptoms include severe fatigue, post-exertional malaise, unrefreshing sleep, and cognitive impairments (“brain fog”). These symptoms can range from mild to severe and may worsen…
Chronic Fatigue Syndrome (CFS), also known as Myalgic Encephalomyelitis (ME), faces persistent stigma that affects patients’ access to care, research, and social acceptance. Here are the key points regarding this issue: Misunderstanding the Condition: The stigma surrounding ME/CFS stems from misconceptions about its nature, with some viewing it as psychological rather than physiological. These misunderstandings…