During August and September 2026, Parliamentary Questions continued to raise important issues concerning ME/CFS, including specialist healthcare services, severe and very severe ME, Post-Exertional Malaise (PEM), patient data, nutrition and support for children and young people. ME/CFS Delivery Plan Questions were raised about progress on the Government’s Final Delivery Plan for ME/CFS and when a…
On Tuesday 28 July, WAMES met with the Cabinet Minister for Health and Care, Mabon ap Gwynfor MS, alongside representatives from Action for ME, SMEDC and Long Covid Support. Go to, https://www.wames.org.uk/meeting-with-health-minister-me-lc-services-in-wales/
During July 2026, a series of Parliamentary Questions raised important issues concerning ME/CFS research, access to specialist healthcare, severe and very severe ME, professional education and the development of future NHS services ME/CFS Research and Funding The Government confirmed its commitment to supporting high-quality research into the causes, consequences and treatment of ME/CFS through the…
Major Investment in ME/CFS Research The UK Government has announced a £4.75 million investment in the new SequenceME programme, one of the largest genetic studies ever undertaken for ME/CFS. The project will analyse the genomes of up to 6,000 people with ME/CFS and aims to identify biological causes of the condition, improve diagnosis, and support…
This summary outlines key discussion points from the Scottish Parliament regarding support for people with Myalgic Encephalomyelitis (ME) and Long Covid, with a focus on services, funding, and future provision. Funding and Support Services The Scottish Government has committed £4.5 million in recurring funding for NHS boards to support services for ME, Long Covid, and…
This document summarises a series of UK Parliamentary questions and responses from April 2026 regarding Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), focusing on healthcare services, support for severely affected patients, research, and policy implementation. Specialist Services and Care Provision The Government’s July 2025 ME/CFS Final Delivery Plan includes a commitment to explore the creation of a…
This document brings together UK Parliamentary questions and official government responses from February and March 2026 relating to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). It focuses on services for people with severe and very severe ME/CFS, research funding and priorities, benefits assessments, and accountability for delivery of the Government’s ME/CFS Final Delivery Plan. Key Points 1….
Overview This document compiles UK Parliamentary written questions and official government responses from January 2026 relating to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). It focuses on NHS service provision, care for severe and very severe ME/CFS, research funding, policy development, and implementation of NICE guidelines. Key Points 1. NHS Services and Care Provision Responsibility for commissioning…
Key Points Noted by the Senedd ME is recognised as a chronic, disabling illness affecting individuals at all severity levels. [WELSH ASSE…ember 2025 | PDF] 25% of people with ME are severely or very severely affected, meaning they are largely or fully bedbound, often requiring full‑time care, palliative management, or tube feeding. [WELSH ASSE…ember 2025…
1. Specialist ME/CFS Services and Local Provision MPs asked about the adequacy of ME/CFS services in Surrey Heath and Ashfield. The Government confirmed the ME/CFS Final Delivery Plan (July 2025) guides improvements in research, attitudes, and care. NHS England is developing resources to strengthen services for mild and moderate ME/CFS and exploring the creation of…