The NICE guidelines outline the diagnosis and management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), emphasizing the need for medically led care, accurate and timely diagnosis, and ongoing support. Key points include: Nature of ME/CFS: A complex, chronic medical condition affecting multiple body systems, with quality of life often significantly lower than in other severe chronic…
ME (Myalgic Encephalomyelitis), also known as chronic fatigue syndrome, is a debilitating neurological illness that impacts over 7,000 people in Northern Ireland. Many patients suffer without a diagnosis or treatment plan, feeling stigmatized and unsupported. ME Support NI, a charity founded by Antoinette and David from west Belfast, offers invaluable aid to ME patients, providing…
In July and August 2024, updates on Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS), focused on government initiatives and research advancements. Key highlights include: Consultation Progress: The Department of Health and Social Care continued analyzing feedback from the consultation on the interim delivery plan titled “My Full Reality.” Stakeholder input emphasized the…
In May 2024, updates on Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS), focused on government initiatives and research advancements. Key highlights include: Consultation Feedback: The Department of Health and Social Care continued analyzing responses to the consultation on the interim delivery plan titled “My Full Reality.” Stakeholder feedback emphasized the need for…
In April 2024, updates on Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS), focused on government initiatives and research developments. Key highlights include: Consultation Feedback: The Department of Health and Social Care analyzed responses to the consultation on the interim delivery plan titled “My Full Reality.” Stakeholder feedback emphasized the need for increased…
n March 2024, updates on Chronic Fatigue Syndrome (CFS), also known as Myalgic Encephalomyelitis (ME), focused on government consultations and delivery plans. Key highlights include: Consultation Analysis: The Department of Health and Social Care analyzed responses to the consultation on the interim delivery plan titled “My Full Reality.” Feedback from individuals with ME/CFS, carers, and…
In December 2023, significant updates on the diagnosis and research of Chronic Fatigue Syndrome (CFS), also known as Myalgic Encephalomyelitis (ME), were highlighted: Diagnostic Challenges: Persistent fatigue, cognitive difficulties, and unexplained pain remain key symptoms, but diagnosis is complex due to symptom overlap with other conditions like fibromyalgia and autoimmune diseases Research Developments: Studies explored…
In December 2023, updates on health services for Chronic Fatigue Syndrome (CFS), also known as Myalgic Encephalomyelitis (ME), highlighted several key developments: Consultation Outcomes: The UK government published a summary report of responses to the 2023 consultation on the interim delivery plan for ME/CFS. These responses, along with stakeholder engagement, are shaping the final delivery…
Research and updates on viral diseases in November 2023 highlighted several key developments: High-Consequence Infectious Diseases (HCIDs): The UK Health Security Agency (UKHSA) released a summary of global HCID events, including updates on diseases like Crimean-Congo Hemorrhagic Fever (CCHF) and Avian Influenza A (H5N1) These reports provide risk assessments and insights into outbreaks and their…
In November 2023, updates on health services for Chronic Fatigue Syndrome (CFS), also known as Myalgic Encephalomyelitis (ME), highlighted several key developments: Integrated Care Boards (ICBs): ICBs are responsible for commissioning specialist ME/CFS services tailored to the needs of their local populations, subject to prioritization and funding Interim Delivery Plan: The government continued consultations on…