This document provides a detailed overview of recent discussions and updates from the UK Parliament regarding long COVID, myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS), and related healthcare services and research initiatives. Key points include: Long COVID Clinics: Integrated Care Boards (ICBs) are responsible for service commissioning. An NHS England stocktake revealed…
Recent discussions in the UK Parliament have focused on improving the care and support for individuals affected by myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS). Key areas of action include: Delivery Plan Development: The government is finalizing a comprehensive ME/CFS delivery plan aimed at boosting research, improving healthcare services, and enhancing education and…
The UK Government discussed developments in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and long COVID care during February 2025. Key highlights include: Delivery Plan for ME/CFS: The final delivery plan aims to focus on boosting research, improving education, and bettering the lives of those affected. It is set to be published by March 2025, informed by…
January 2025 saw crucial discussions in the UK Parliament focusing on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and post-COVID-19 services. Key updates include: ME/CFS Services Stocktake: NHS England conducted a comprehensive review of ME/CFS and post-COVID-19 services to evaluate current challenges, develop strategic recommendations, and enhance service delivery. Healthcare Training Improvements: The Department of Health and…
The NICE guidelines outline the diagnosis and management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), emphasizing the need for medically led care, accurate and timely diagnosis, and ongoing support. Key points include: Nature of ME/CFS: A complex, chronic medical condition affecting multiple body systems, with quality of life often significantly lower than in other severe chronic…
ME (Myalgic Encephalomyelitis), also known as chronic fatigue syndrome, is a debilitating neurological illness that impacts over 7,000 people in Northern Ireland. Many patients suffer without a diagnosis or treatment plan, feeling stigmatized and unsupported. ME Support NI, a charity founded by Antoinette and David from west Belfast, offers invaluable aid to ME patients, providing…
In July and August 2024, updates on Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS), focused on government initiatives and research advancements. Key highlights include: Consultation Progress: The Department of Health and Social Care continued analyzing feedback from the consultation on the interim delivery plan titled “My Full Reality.” Stakeholder input emphasized the…
In May 2024, updates on Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS), focused on government initiatives and research advancements. Key highlights include: Consultation Feedback: The Department of Health and Social Care continued analyzing responses to the consultation on the interim delivery plan titled “My Full Reality.” Stakeholder feedback emphasized the need for…
In April 2024, updates on Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS), focused on government initiatives and research developments. Key highlights include: Consultation Feedback: The Department of Health and Social Care analyzed responses to the consultation on the interim delivery plan titled “My Full Reality.” Stakeholder feedback emphasized the need for increased…
n March 2024, updates on Chronic Fatigue Syndrome (CFS), also known as Myalgic Encephalomyelitis (ME), focused on government consultations and delivery plans. Key highlights include: Consultation Analysis: The Department of Health and Social Care analyzed responses to the consultation on the interim delivery plan titled “My Full Reality.” Feedback from individuals with ME/CFS, carers, and…