Political Papers

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Chronic Fatigue Syndrome: Health Services (December 2023)

In December 2023, updates on health services for Chronic Fatigue Syndrome (CFS), also known as Myalgic Encephalomyelitis (ME), highlighted several key developments: Consultation Outcomes: The UK government published a summary report of responses to the 2023 consultation on the interim delivery plan for ME/CFS. These responses, along with stakeholder engagement, are shaping the final delivery…

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Viral Diseases Research: November 2023

Research and updates on viral diseases in November 2023 highlighted several key developments: High-Consequence Infectious Diseases (HCIDs): The UK Health Security Agency (UKHSA) released a summary of global HCID events, including updates on diseases like Crimean-Congo Hemorrhagic Fever (CCHF) and Avian Influenza A (H5N1) These reports provide risk assessments and insights into outbreaks and their…

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Chronic Fatigue Syndrome: Health Services (November 2023)

In November 2023, updates on health services for Chronic Fatigue Syndrome (CFS), also known as Myalgic Encephalomyelitis (ME), highlighted several key developments: Integrated Care Boards (ICBs): ICBs are responsible for commissioning specialist ME/CFS services tailored to the needs of their local populations, subject to prioritization and funding Interim Delivery Plan: The government continued consultations on…

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Chronic Fatigue Syndrome and Coronavirus: November 2023

Research and discussions in November 2023 explored the relationship between Chronic Fatigue Syndrome (CFS), also known as Myalgic Encephalomyelitis (ME), and coronavirus. Key highlights include: Shared Symptoms: Both ME/CFS and Long Covid exhibit overlapping symptoms, such as persistent fatigue, cognitive difficulties, and post-exertional malaise Biological Mechanisms: Studies have investigated immune system dysregulation and oxidative stress…

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Chronic Fatigue Syndrome Research: November 2023

Research into Chronic Fatigue Syndrome (CFS), also known as Myalgic Encephalomyelitis (ME), in November 2023 highlighted several key developments: Antibody Response Studies: A study explored the antibody response to Epstein-Barr Virus (EBV) to determine its potential as a diagnostic biomarker for ME/CFS Findings revealed that while individual antibodies couldn’t distinguish ME/CFS patients from healthy controls,…

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New Government Delivery Plan to Support Children with ME/CFS (September 2023)

The UK government has outlined a delivery plan to enhance support for children and young people living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Key highlights include: Interim Delivery Plan: Published on 9 August 2023, the plan identifies 21 actions aimed at improving understanding, research, and care for ME/CFS. Specific focus areas include education, social care,…

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Chronic Fatigue Syndrome: Health Services (September 2023)

In September 2023, updates on health services for Chronic Fatigue Syndrome (CFS), also known as Myalgic Encephalomyelitis (ME), highlighted several key developments: Interim Delivery Plan: The UK government published an interim delivery plan titled “My Full Reality” on 9 August 2023. This plan outlines 21 actions to enhance understanding, research, and care for ME/CFS. The…

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Postural Tachycardia Syndrome: Medical Treatments (July 2023)

Postural Tachycardia Syndrome (PoTS) is a condition affecting the autonomic nervous system, leading to symptoms like rapid heart rate, dizziness, and fatigue upon standing. Key updates from July 2023 include: Pharmacological Treatments: Medications such as beta-blockers, fludrocortisone, and midodrine are commonly used to manage PoTS symptoms. Research continues to explore new drug therapies to improve…

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Our Plan to Improve the Lives of People with ME/CFS

The UK government has outlined a comprehensive plan to support individuals living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Key highlights include: Interim Delivery Plan: Published in August 2023, the plan identifies 21 actions aimed at improving understanding, research, and care for ME/CFS. It focuses on three main themes: research, attitudes and education, and living with…

Stack of folded newspapers on a wooden table with a focus on printed pages.

Chronic Fatigue Syndrome: Health Services (September 2023)

In September 2023, updates on health services for Chronic Fatigue Syndrome (CFS), also known as Myalgic Encephalomyelitis (ME), highlighted several key developments: Interim Delivery Plan: The UK government published an interim delivery plan titled “My Full Reality” on 9 August 2023, outlining 21 actions to improve understanding, research, and care for ME/CFS The plan focuses…