Summary: This document evaluates healthcare needs for people living with Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS) in Scotland. Key points include: Defining ME and CFS: The Canadian Guideline is recommended for defining ME, while the NICE guideline is proposed for CFS. Differentiating ME and CFS aims to improve diagnosis and focused care, but…
Summary: This document, prepared by the 25% ME Group, highlights the challenges in medical education regarding Myalgic Encephalomyelitis (ME) in Scotland and the advocacy efforts of the “Taking ME Forward” (TMEF) initiative. Key points include: Medical School Curricula: A review of curricula at five Scottish medical schools revealed significant gaps in ME education. Only two…
Summary: This document, prepared by the 25% ME Group, highlights the challenges in medical education regarding Myalgic Encephalomyelitis (ME) in Scotland and the advocacy efforts of the “Taking ME Forward” (TMEF) initiative. Key points include: Medical School Curricula: A review of curricula at five Scottish medical schools revealed significant gaps in ME education. Only two…
Summary: This document outlines the timeline and challenges surrounding the establishment of the Lothian ME-CFS pilot service, highlighting key events and concerns. Key points include: Initial Funding and Planning: In January 2011, NHS Lothian allocated a recurring investment of £25,000 for ME-CFS work. Meetings with stakeholders, including Action for ME, informed the development of the…
Summary: This document provides an overview of the Cross Party Group (CPG) on Myalgic Encephalomyelitis (ME) in Scotland during 2012, highlighting key meetings, events, and initiatives. Key points include: CPG Meetings: January 19, 2012: Focused on establishing six working groups addressing areas such as healthcare needs, GP education, and welfare reform. Feedback from the 25%…
Summary: This document provides an overview of the final meeting of the Cross Party Group (CPG) on Myalgic Encephalomyelitis (ME) in the Scottish Parliament, highlighting key events and challenges. Key points include: Final Meeting and Vote: On September 19, 2012, the CPG voted on whether to focus solely on ME (as defined by WHO ICD10…
Summary: This document, prepared by Helen Brownlie on behalf of the 25% ME Group, serves as a guide for lobbying Members of the Scottish Parliament (MSPs) on issues related to Myalgic Encephalomyelitis (ME). Key highlights include: Purpose: The guide lists MSPs who have shown interest or involvement in ME-related matters, including participation in parliamentary events,…
Summary: This document, dated September 25, 2012, addresses concerns regarding the Cross Party Group (CPG) on Myalgic Encephalomyelitis (ME) in Scotland. Key points include: Vote on Remit: A vote held on September 19, 2012, overwhelmingly supported focusing the CPG on neurological ME. However, within 24 hours, an email circulated proposing a second vote, raising questions…
Summary: This document explores the Scottish Parliament’s work on Myalgic Encephalomyelitis (ME) advocacy and policy, spanning petitions, parliamentary debates, and progress reports. Key points include: Petition by Cross Party Group: Lodged in October 2001, the petition called for a strategic needs review, accurate data collection on ME/CFS patients, and the establishment of a center of…
Summary: This document reflects on the closure of the Cross Party Group (CPG) on ME in the Scottish Parliament, highlighting key events and controversies. Key points include: Voting and Controversy: The CPG convenor initiated a vote on establishing a specialist ME clinic versus ME/CFS fatigue clinics. Tymes Trust was tasked with preparing voting options, which…