The All-Party Parliamentary Group (APPG) on ME convened in 2012 to address ongoing challenges facing ME/CFS patients, including welfare reforms, NHS services, and research advancements. Here’s an overview of the key discussions: Welfare Reform: Updates highlighted the continued rollout of Personal Independence Payment (PIP) replacing Disability Living Allowance (DLA). Concerns persisted around the Work Capability…
The All-Party Parliamentary Group (APPG) on ME convened on October 25, 2011, to discuss key issues affecting ME/CFS patients, including welfare reforms, research updates, and NHS services. Below is a summary of the main points: Welfare Reform: Updates on the Welfare Reform Bill included changes to benefits, such as the introduction of Universal Credit and…
The All-Party Parliamentary Group (APPG) on ME held several key meetings in 2009, addressing critical issues related to ME/CFS patients, NHS services, and welfare reforms. Below is a summary of the main discussions: July 8, 2009 Meeting: Chaired by Dr. Des Turner MP, with the Countess of Mar and other MPs in attendance. Focused on…
The All-Party Parliamentary Group (APPG) meeting on ME, held on October 8, 2008, focused on significant issues surrounding welfare reforms, child protection, NHS service provisions, and advocacy for patients with ME/CFS. Here’s a concise overview of the key discussions: Welfare Reform Presentation: Rt Hon James Purnell MP presented the Welfare Reform Green Paper, highlighting changes…
This document provides summaries of two meetings conducted by the All-Party Parliamentary Group (APPG) on ME/CFS in 2007. It highlights key discussions, presentations, and outcomes related to ME/CFS services and policy in the UK. Meeting Held on 22nd February 2007: Attended by representatives from ME/CFS charities, individuals, and MPs, alongside guest speakers from NICE. The…
This report provides an overview of the All-Party Parliamentary Group (APPG) on ME meeting held on 12th July 2007 at the House of Commons. The session combined the APPG’s Annual General Meeting with discussions addressing significant challenges related to ME/CFS services in the UK. Key Highlights: Annual General Meeting: The existing officers were re-elected, with…
This brief report outlines the outcomes of an All-Party Parliamentary Group (APPG) session held in January 2008. It highlights the key discussions and recommendations made during the meeting, focusing on collaborative approaches to address pressing issues. Key Highlights: Background Context: The report explains the motivations behind the session, emphasizing the importance of a united, cross-party…
Summary: This document captures key discussions from the Scottish Parliament’s debate on Long Covid, emphasizing its parallels with Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS). Key points include: Historical Context of ME: John Mason (Glasgow Shettleston) highlighted the timeline of ME, tracing its recognition from 1934 (atypical polio) to its reclassification as CFS in…
Summary: This document evaluates healthcare needs for people living with Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS) in Scotland. Key points include: Defining ME and CFS: The Canadian Guideline is recommended for defining ME, while the NICE guideline is proposed for CFS. Differentiating ME and CFS aims to improve diagnosis and focused care, but…
Summary: This document, prepared by the 25% ME Group, highlights the challenges in medical education regarding Myalgic Encephalomyelitis (ME) in Scotland and the advocacy efforts of the “Taking ME Forward” (TMEF) initiative. Key points include: Medical School Curricula: A review of curricula at five Scottish medical schools revealed significant gaps in ME education. Only two…