The All-Party Parliamentary Group (APPG) meeting on ME, held on October 8, 2008, focused on significant issues surrounding welfare reforms, child protection, NHS service provisions, and advocacy for patients with ME/CFS. Here’s a concise overview of the key discussions: Welfare Reform Presentation: Rt Hon James Purnell MP presented the Welfare Reform Green Paper, highlighting changes…
This document provides summaries of two meetings conducted by the All-Party Parliamentary Group (APPG) on ME/CFS in 2007. It highlights key discussions, presentations, and outcomes related to ME/CFS services and policy in the UK. Meeting Held on 22nd February 2007: Attended by representatives from ME/CFS charities, individuals, and MPs, alongside guest speakers from NICE. The…
This report provides an overview of the All-Party Parliamentary Group (APPG) on ME meeting held on 12th July 2007 at the House of Commons. The session combined the APPG’s Annual General Meeting with discussions addressing significant challenges related to ME/CFS services in the UK. Key Highlights: Annual General Meeting: The existing officers were re-elected, with…
This brief report outlines the outcomes of an All-Party Parliamentary Group (APPG) session held in January 2008. It highlights the key discussions and recommendations made during the meeting, focusing on collaborative approaches to address pressing issues. Key Highlights: Background Context: The report explains the motivations behind the session, emphasizing the importance of a united, cross-party…
Summary: This document captures key discussions from the Scottish Parliament’s debate on Long Covid, emphasizing its parallels with Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS). Key points include: Historical Context of ME: John Mason (Glasgow Shettleston) highlighted the timeline of ME, tracing its recognition from 1934 (atypical polio) to its reclassification as CFS in…
Summary: This document evaluates healthcare needs for people living with Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS) in Scotland. Key points include: Defining ME and CFS: The Canadian Guideline is recommended for defining ME, while the NICE guideline is proposed for CFS. Differentiating ME and CFS aims to improve diagnosis and focused care, but…
Summary: This document, prepared by the 25% ME Group, highlights the challenges in medical education regarding Myalgic Encephalomyelitis (ME) in Scotland and the advocacy efforts of the “Taking ME Forward” (TMEF) initiative. Key points include: Medical School Curricula: A review of curricula at five Scottish medical schools revealed significant gaps in ME education. Only two…
Summary: This document, prepared by the 25% ME Group, highlights the challenges in medical education regarding Myalgic Encephalomyelitis (ME) in Scotland and the advocacy efforts of the “Taking ME Forward” (TMEF) initiative. Key points include: Medical School Curricula: A review of curricula at five Scottish medical schools revealed significant gaps in ME education. Only two…
Summary: This document outlines the timeline and challenges surrounding the establishment of the Lothian ME-CFS pilot service, highlighting key events and concerns. Key points include: Initial Funding and Planning: In January 2011, NHS Lothian allocated a recurring investment of £25,000 for ME-CFS work. Meetings with stakeholders, including Action for ME, informed the development of the…
Summary: This document provides an overview of the Cross Party Group (CPG) on Myalgic Encephalomyelitis (ME) in Scotland during 2012, highlighting key meetings, events, and initiatives. Key points include: CPG Meetings: January 19, 2012: Focused on establishing six working groups addressing areas such as healthcare needs, GP education, and welfare reform. Feedback from the 25%…