25% M.E Group
Group Fact-sheets, Leaflets & Reports
Group Resources
These resources are designed to educate and advocate for better understanding and support for those living with severe M.E. It includes: Factsheets and Leaflets: Covering topics such as vision dysfunction in M.E., pacing guidelines, and post-exertional neuroimmune exhaustion (PENE), Reports: Highlighting issues faced by severely affected M.E. sufferers, including diagnostic tests, viral causes, and clinical observations and Surveys / Questionnaires: Offering insights into social services, patient experiences, and the impact of graded exercise therapy.
| Title | Summary | Categories | Link |
|---|---|---|---|
| Vision Dysfunction in Myalgic Encephalomyelitis | Purpose: This document examines the prevalence, underlying causes, and clinical implications of vision dysfunction in individuals with Myalgic Encephalomyelitis (ME). It aims to increase awareness of how visual disturbances contribute … | Group Leaflets | |
| Sleep and ME | Purpose: This document examines the complex relationship between sleep disturbances and Myalgic Encephalomyelitis (ME). It highlights how sleep issues—such as insomnia, non-restorative sleep, and disrupted sleep patterns—play a significant role … | Group Leaflets | |
| Rest, Pacing, and Stress: What Every ME Patient Should Know | Purpose: This document offers essential guidance for individuals with Myalgic Encephalomyelitis (ME) on how to manage their condition through proper rest, effective pacing of activities, and stress reduction. It is … | Group Leaflets | |
| Challenging Scientists to Make ME Front Page News | Purpose: This document is a call to action, urging the scientific community to bring Myalgic Encephalomyelitis (ME) into the spotlight. It seeks to inspire researchers, clinicians, and stakeholders to prioritize … | Group Leaflets | |
| PENE is Post-Exertional Neuroimmune Exhaustion | Purpose: This document explains the concept of PENE—Post-Exertional Neuroimmune Exhaustion—which is proposed as a more precise term to describe the unique physiological response seen in individuals with Myalgic Encephalomyelitis (ME) … | Group Leaflets | |
| Diagnostic Tests for Myalgic Encephalomyelitis – 2020 | Purpose: This document provides an overview of the diagnostic tests and methodologies available for Myalgic Encephalomyelitis (ME) as of 2020. It aims to inform healthcare professionals, researchers, and patients about … | Group Leaflets | |
| Myalgic Encephalomyelitis: Viral Causes – 25 ME Group | Purpose: This document explores the potential viral origins of Myalgic Encephalomyelitis (ME). It examines current research and theories regarding how viral infections may trigger or contribute to the development of … | Group Leaflets | |
| Tribute to Dr. Byron Hyde – 25 ME Group | Purpose: This document serves as a heartfelt tribute to Dr. Byron Hyde, honoring his significant contributions to the field of Myalgic Encephalomyelitis (ME) and his enduring impact on the 25 … | Group Leaflets | |
| Reflections on the Failure of Legitimate Diagnoses of ME in the 21st Century | Purpose: This document provides an updated overview of Myalgic Encephalomyelitis (ME) in the context of modern medical and societal advancements as of September 2019. It examines recent research findings, evolving … | Group Leaflets | |
| Category Measure of Symptom Severity | Purpose: This document introduces a systematic approach for assessing and categorizing the severity of symptoms. It provides detailed guidelines, criteria, and methodologies to reliably quantify symptom intensity, thereby supporting both … | Group Leaflets | |
| Clinical Observations of Myalgic Encephalomyelitis | Purpose: This document compiles and presents detailed clinical observations gathered from practice. It aims to provide healthcare professionals and researchers with valuable insights into patient presentations, treatment responses, and emerging … | Group Leaflets | |
| A PATIENT’S PERSPECTIVE Information Leaflet for Professionals Caring for People with Severe M.E. (Myalgic Encephalomyelitis) | Purpose: This leaflet is designed to equip healthcare professionals with targeted, patient-focused information and practical guidance for improved clinical care. It aims to bridge the gap between patient experiences and … | Group Leaflets | |
| ME Leaflet Online | Purpose: This online leaflet offers a concise and accessible overview of Myalgic Encephalomyelitis (ME). It is designed to educate patients, carers, and healthcare professionals by providing key information about the … | Group Leaflets | |
| ME Info Sheet | Purpose: This info sheet offers a concise overview of Myalgic Encephalomyelitis (ME), providing essential details about the condition’s nature, symptoms, diagnosis, and management. It is designed to raise awareness, correct … | Group Leaflets | |
| Experiences of the NHS | Purpose: This document provides an overview of personal and collective experiences with the National Health Service (NHS). It gathers insights from patients, carers, and healthcare professionals to highlight both positive … | Group Leaflets |
| Title | Summary | Categories | Link |
|---|---|---|---|
| Social Services Analysis Report | Purpose: This report provides a comprehensive analysis of current social services, focusing on the operational framework, challenges, and opportunities for improvement. It is intended to inform decision-makers and stakeholders about … | Group Questionnaires & Surveys | |
| Adult Social Services Questionnaire | Purpose: This questionnaire is designed to gather detailed feedback about the provision of adult social care services. It aims to assess the effectiveness, accessibility, and overall quality of support services, … | Group Questionnaires & Surveys | |
| August 2001 Multiple ME Family Report | Purpose: This report provides an in-depth look into the unique challenges faced by families in which multiple members are affected by Myalgic Encephalomyelitis (ME). It examines the compounded emotional, social, … | Group Questionnaires & Surveys | |
| Follow-Up Survey on People with ME | Purpose: This document presents the results and analysis of a follow-up survey conducted among individuals with Myalgic Encephalomyelitis (ME). The survey aims to update previous findings by capturing current experiences, … | Group Questionnaires & Surveys | |
| July 2000 Questionnaire Report | Purpose: This report presents the findings from a comprehensive questionnaire administered in July 2000. It explores the experiences, symptoms, and challenges faced by individuals with Myalgic Encephalomyelitis (ME). The report … | Group Questionnaires & Surveys | |
| March 2004 Severe ME Analysis Report | Purpose: This report provides an in-depth analysis of severe Myalgic Encephalomyelitis (ME) as of March 2004. It investigates the clinical challenges, healthcare shortcomings, and the broader socio-economic impacts on individuals … | Group Questionnaires & Surveys | |
| May 2002 Generic ME Report | Purpose: This report provides an in-depth overview of Myalgic Encephalomyelitis (ME) as understood in 2002. It reviews the clinical features, diagnostic challenges, and the multi-faceted impact of ME on patients’ … | Group Questionnaires & Surveys | |
| Severely Affected and Graded Exercise | Purpose: This document examines the application of graded exercise therapy (GET) for individuals who are severely affected by chronic illnesses such as ME. It reviews the potential risks and limitations … | Group Questionnaires & Surveys | |
| Social Service Summary Analysis | Purpose: This document provides a comprehensive analysis of current social services, focusing on how the system supports individuals with complex and vulnerable needs. It examines key challenges, evaluates existing practices, … | Group Questionnaires & Surveys | |
| Social Services Report – Part 1 | Purpose: This report is the first part of an in-depth analysis that examines the current state of social services, focusing especially on how the system supports individuals with complex health … | Group Questionnaires & Surveys | |
| Social Services Report – Part 2 | Purpose: This report provides an in-depth analysis of the current state of social services as they relate to supporting individuals with complex needs, including those with chronic illnesses like ME. … | Group Questionnaires & Surveys |
| Title | Summary | Categories | Link |
|---|---|---|---|
| 25 ME Group Stonebird DSM Submission | Purpose: This document is a formal submission from the 25 ME Group, in collaboration with Stonebird, addressing the shortcomings of current DSM diagnostic criteria in relation to Myalgic Encephalomyelitis (ME) … | Group Reports | |
| DSM-V Submission | Purpose: This document is a formal submission addressing concerns with the proposed DSM-V criteria. It advocates for revisions that more accurately reflect clinical realities—especially for conditions with complex neurobiological and … | Group Reports | |
| Supporting People with Severe ME | Purpose: This article, featured in Nursing Times, provides guidance for healthcare professionals on delivering effective, compassionate care for patients with severe Myalgic Encephalomyelitis (ME). It aims to enhance understanding and … | Group Reports | |
| The Lightning Process™ and ME | Purpose: This document examines the Lightning Process™—a training program that combines mind-body techniques, neurolinguistic programming (NLP), and cognitive strategies—in the context of Myalgic Encephalomyelitis (ME). It aims to inform readers … | Group Reports | |
| Understanding Severe ME | Purpose: This article offers a comprehensive overview of Severe Myalgic Encephalomyelitis (ME), a profoundly debilitating condition. It aims to improve understanding among patients, carers, and healthcare professionals by highlighting the … | Group Reports |