Caring for the m.e
Carers Guidance & Resources
Care Resources
This page offers various resources to support carers of M.E individuals. Caring for a person with severe ME requires great sensitivity. We recommend the range of resources developed by Greg Crowhurst.
We recommend Greg Crowhurst’s resources. Greg, a qualified nurse with extensive experience caring for a family member with severe ME, offers various resources on his website: http://stonebird.co.uk. You can buy his books there, including some free on Kindle. Get “Care for Someone with Severe ME” (2015) at https://stonebird.co.uk/Notes/index.html. His latest book, “Caring for ME, a Pocket Book Course for Carers” (2018), has a brief downloadable resource and a sample, “Five Important Lessons,” published below.
| Title | Summary | Categories | Link |
|---|---|---|---|
| Supporting People with Severe Myalgic Encephalomyelitis | Overview: Myalgic Encephalomyelitis (ME): Also known as Chronic Fatigue Syndrome (CFS), it is a serious, often misunderstood, neurological condition. Symptoms range from mild to severe disability, with 25% of cases … | Carers Guidance & Resources | |
| Knowledge in the Hope of Protecting M.E. Sufferers from Unnecessary Sectioning | Here is a concise summary of the document: Background: The document aims to prevent unnecessary sectioning of individuals with Myalgic Encephalomyelitis (M.E.), emphasizing that M.E. is a neurological, biomedical illness, … | Carers Guidance & Resources | |
| Caring for People with Severe Myalgic Encephalomyelitis: an open heart, open mind approach | Caring for People with Severe Myalgic Encephalomyelitis: an open heart, open mind approach: About Myalgic Encephalomyelitis (ME): ME is a multi-system dysfunction classified by the WHO. In severe cases, individuals … | Carers Guidance & Resources |