Summary of UK House of Commons Written Answers on Myalgic Encephalomyelitis (ME/CFS) – May 2025

A series of parliamentary written answers from May 2025 address the UK Government’s approach to Myalgic Encephalomyelitis (ME/CFS) and related issues, including social security benefits, personal independence payment (PIP), healthcare services, employment, and discrimination protections.

Key points include:

• The Government’s Pathways to Work Green Paper outlines reforms to health and disability benefits, aiming to reduce reassessments for individuals with severe lifelong conditions, including ME/CFS. However, no specific exemptions will be made.
• The impact of new PIP eligibility criteria on individuals with fluctuating illnesses, including ME/CFS, is under assessment, with further analysis planned.
• NHS England’s ME/CFS stocktake found significant variations in care across the country. A final ME/CFS delivery plan, focusing on research, education, and support improvements, is scheduled for publication by June 2025.
• Access to Work grants remain available for individuals with ME/CFS, ensuring tailored employment support while reinforcing employer responsibilities under the Equality Act 2010.
• The Government has reaffirmed that the ME/CFS final delivery plan will not extend to other conditions causing fatigue, such as long COVID or fibromyalgia.
• Sian Berry MP has launched a parliamentary motion advocating for a fairer welfare system that respects disabled individuals, urging cross-party support.

These developments reflect ongoing discussions about improving welfare and healthcare provisions for those with ME/CFS.