New Government Delivery Plan to Support Children with ME/CFS (September 2023)

The UK government has outlined a delivery plan to enhance support for children and young people living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Key highlights include:

1. Interim Delivery Plan:
   • Published on 9 August 2023, the plan identifies 21 actions aimed at improving understanding, research, and care for ME/CFS.
   • Specific focus areas include education, social care, and tailored support for children and young people.
2. Consultation Process:
   • A public consultation was launched to gather feedback from individuals with ME/CFS, carers, and healthcare professionals.
   • Insights from this process will inform the development of a final delivery plan.
3. Collaborative Approach:
   • The plan emphasizes collaboration with families, educators, and healthcare providers to address the unique challenges faced by children with ME/CFS.
   • It aims to improve access to services and reduce stigma associated with the condition.

This initiative represents a significant step toward improving the quality of life for children and young people affected by ME/CFS