Myalgic Encephalomyelitis (ME) Updates: December 2024
The NICE guidelines outline the diagnosis and management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), emphasizing the need for medically led care, accurate and timely diagnosis, and ongoing support. Key points include:
- Nature of ME/CFS: A complex, chronic medical condition affecting multiple body systems, with quality of life often significantly lower than in other severe chronic illnesses.
- Diagnosis: Focuses on strict criteria including core symptoms like unrefreshing sleep, cognitive difficulties, debilitating fatigue, and post-exertional malaise. The minimum symptom duration for diagnosis is reduced to three months.
- Energy Management: Advises careful energy use and individualized strategies to prevent symptom exacerbation. Fixed incremental exercise programs (e.g., Graded Exercise Therapy) are not recommended as they can cause harm.
- Treatment: No curative approaches exist. Cognitive Behavioral Therapy (CBT) is recommended only for symptom management and not as a cure.
- Support for Severely Affected Patients: Ensures risk assessment for interactions, personalized care plans, and addressing unique needs like sensitivity to light, sound, and touch.
- Holistic Support: Covers symptom management, co-morbid conditions, social care needs, and nutritional support. It stresses clear communication, informed consent, and adapting care environments.
For full details, refer to NICE guidance NG206.
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