ME in Wales: Summer Update 2012

Summary: The report highlights advocacy efforts and community engagement for ME (Myalgic Encephalomyelitis) in Wales during 2012. Key points include:

• Political Advocacy: Julie Morgan, Assembly Member for North Cardiff, attended a support group meeting in November 2012. She listened to patients’ concerns about the lack of services, understanding, and challenges in accessing benefits. She invited the group to speak at the Welsh Assembly, advocating for an ME clinic led by a consultant and trained team.
• Welsh Assembly Presentation: On March 21, 2012, 12 Assembly Members attended a presentation by the support group. The presentation moved attendees, leading to pledges of support and an invitation to return every six months.
• Health Minister Engagement: On April 25, 2012, four Assembly Members presented the group’s points to Lesley Griffiths, the Health Minister.
• Awareness Event: MESIG held an AGM/Awareness event on May 19, 2012, featuring Julie Morgan, a naturopath, and a Pilates teacher specializing in chronic conditions and disabilities.

The report underscores the importance of political advocacy, community support, and awareness initiatives to address the challenges faced by ME patients in Wales. Let me know if you’d like to delve deeper into any aspect!