Brief Report on APPG on ME Meeting 2013

The All-Party Parliamentary Group (APPG) on ME continued its work in 2013, focusing on welfare reforms, NHS services, and ongoing research for ME/CFS patients. Below are the main highlights:

1. Welfare Reform:
   • Concerns remained about the impact of Personal Independence Payment (PIP) assessments on ME/CFS patients.
   • The effectiveness of the Work Capability Assessment (WCA) was again questioned, with issues regarding fluctuating conditions highlighted.
2. Research Developments:
   • Updates on the ME Biobank reflected steady progress, with the initiative continuing to gain support and funding.
   • Discussions included follow-ups on Rituximab research, balancing optimism with caution due to potential risks.
   • Calls for further studies on biological markers and treatment options were emphasized.
3. NHS Service Challenges:
   • Significant concerns were raised about service disparities across the UK.
   • Advocacy continued for better specialist care and equitable access to services for all ME/CFS patients, especially those severely affected.
4. Child Protection Issues:
   • Ongoing difficulties were discussed regarding families of children with ME being investigated for abuse. Efforts to collaborate with medical and social authorities were renewed.

The APPG on ME in 2013 remained committed to addressing the pressing needs of ME/CFS patients by fostering awareness, enhancing healthcare services, and driving policy changes.