ME in Parliament – John McDonnell MP: This discusses John McDonnell MP’s advocacy for ME patients during a Westminster Hall debate. He raised concerns about Personal Independence Payment (PIP) assessments and called for reforms to benefit systems for individuals with ME Westminster Watch – YouTube: A YouTube channel delivering news, highlights, and moments from the…
Chronic Fatigue Syndrome (CFS), also known as Myalgic Encephalomyelitis (ME), has limited treatment options, focusing primarily on symptom management. Below are the key highlights: Symptom Management: Medications such as pain relievers, sleep aids, and antidepressants may be prescribed to address specific symptoms. Lifestyle adjustments, including pacing and energy conservation, are essential for managing daily activities….
Research into Chronic Fatigue Syndrome (CFS), also known as Myalgic Encephalomyelitis (ME), continues to evolve, focusing on understanding its biological basis and developing effective treatments. Key highlights include: Metabolic and Immunological Studies: Emerging evidence suggests disruptions in energy metabolism and immune system function among ME/CFS patients. Investigations into mitochondrial dysfunction and chronic inflammation are advancing…
Chronic Fatigue Syndrome (CFS), also known as Myalgic Encephalomyelitis (ME), significantly impacts patients’ health and quality of life. Below are the key points regarding its health aspects: Symptoms and Impact: Core symptoms include severe fatigue, post-exertional malaise, unrefreshing sleep, and cognitive impairments (“brain fog”). These symptoms can range from mild to severe and may worsen…
Chronic Fatigue Syndrome (CFS), also known as Myalgic Encephalomyelitis (ME), faces persistent stigma that affects patients’ access to care, research, and social acceptance. Here are the key points regarding this issue: Misunderstanding the Condition: The stigma surrounding ME/CFS stems from misconceptions about its nature, with some viewing it as psychological rather than physiological. These misunderstandings…
The aftermath of Covid-19 has brought attention to the risk of developing debilitating fatigue and related conditions, such as Long Covid and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Below are the key insights: Long Covid Symptoms: Fatigue, breathlessness, and cognitive difficulties (“brain fog”) are common symptoms of Long Covid
The Countess of Mar retired as the founding Chair of Forward-ME in 2021, marking the end of her remarkable tenure advocating for individuals with Myalgic Encephalomyelitis (ME). Below are the key highlights of her contributions: Founding Forward-ME: Established in 2008, Forward-ME brought together ME charities and organizations to collaborate effectively and amplify their impact. Advocacy…
Chronic Fatigue Syndrome (CFS), also known as Myalgic Encephalomyelitis (ME), has limited treatment options focused primarily on symptom management. Below are key considerations: Symptom-Relief Approaches: Medications, such as pain relievers, sleep aids, and antidepressants, may be prescribed to alleviate specific symptoms, but they do not cure the condition. Lifestyle changes, including pacing and energy management,…
The Department for Work and Pensions (DWP) plays a critical role in addressing the needs of individuals with Myalgic Encephalomyelitis (ME). Below are the key points related to ME and the DWP: Welfare Reforms: The transition from Disability Living Allowance (DLA) to Personal Independence Payment (PIP) has raised concerns about fair assessments for individuals with…
Vaccination against Covid-19 presents unique challenges and considerations for individuals with Myalgic Encephalomyelitis (ME). Below are the main points: Individual Responses: People with ME may experience varied reactions to Covid-19 vaccines, ranging from mild side effects to exacerbation of symptoms. Anecdotal evidence suggests that a small percentage of individuals with ME report prolonged relapses following…